CARCINOID CANCER
A rare form of "slow-growing" neuroendocrine cancer
Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness
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CARCINOID CANCERA rare form of "slow-growing" neuroendocrine cancerSusan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness
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Resource LibraryUpdated: April 12, 2008* * * * * * * * * * * * Miracle House (place to stay when travel to seek consultation and / or treatment)RxMed - Family Physicians Site - drug monographs RxList - The Internet Drug Index PharmWeb - Drug Information
Medical Dictionary from MedicineNet NEW
- Ochsner Neuroendocrine Tumor
Team Laboratory Tests (useful for ALL people, not just those with cancer) Lab Tests On-Line Revolution
Health Advance Care Planning: Dorothy Garske Foundation Lyrica (for neuropathy) Actos (for diabetes) Metformin (for diabetes) AZ Hospice & Palliative Care ASK The Dietitian: The Site for Sound Nutritional Advice Center for Science in the Public Interest - Nutrition Action Healthletter CyberDiet - answers questions about foods and a healthy lifestyle Blonz Guide to Nutrition, Food and Health
Resources
Once-Monthly Somatostatin Analogue Increases Overall Survival in Carcinoid Syndrome, published May 16, 2005 in Medical News Today by Dr. Lowell Anthony. Click here
A 5-Decade Analysis of 13,715 Carcinoid Tumors,published 2003
Interviews on video made at the 2004 New Orleans Carcinoid Conference Some of the things discussion are answers to questions commonly asked by newly diagnosed patients Eugene A. Woltering, MD., Gregory D. Espenan, M.D., Daniel Frey, M.D., Susan Anderson, Carol-Anne Wilson, Jim Weiveris Click here for the video interviews
Susan: Why did you decide to create your own Web site? General Information About Carcinoid and Related Neuroendocrine Tumors -- WITH A BIG THANK YOU TO THE Carcinoid Cancer Foundation (CCF) Click here: Information and Published Papers for the MEDICAL PROFESSIONALS General Information About Carcinoid and Related Neuroendocrine Tumors. This section contains links to websites and full-text and abstract versions of published papers that focus on general information (reviews) of diagnosis, treatment and current research in the field of carcinoid and neuroendocrine tumors.Thank you to the Carcinoid Cancer Foundation, Inc. (CCF), for giving me permission to link directly to this important consensus report below.Consensus Report on the Use of Somatostatin Analogs for the Management of Neuroendocrine Tumors of the Gastroenteropancreatic System By K. Öberg, L. Kvols, M. Caplin, G. Delle Fave, W. de Herder, G. Rindi, P. Ruszniewski, E. A. Woltering, and B. Wiedenmann Annals of Oncology 15: 966–973, 2004. "This consensus report gives a detailed description of the use of somatostatin analogs in the management of neuroendocrine tumors of the gastroenteropancreatic system. As background information we have outlined critical aspects of the pathology, the use of tumor markers, a definition of functional and non-functional digestive neuroendocrine tumors, different imaging modalities, surgical considerations, liver embolization and the use of cytotoxic drugs as well as interferon. Included in the report is an overview of somatostatin, somatostatin analogs and its receptor expression in different neuroendocrine tumors. It will also define the binding affinities of different somatostatin analogs to the five different subtypes of somatostatin receptor. We compare the efficacy of octreotide and lanreotide in reducing diarrhea and flushing. Side-effects are described and we provide practical information on somatostatin analog treatment." Click here to email me SunnySusan@Cox.Net (Please see below)
Since
1996 --- when I first located others with Carcinoid --- I have answered
every email sent to me, although some replies were delayed longer than I liked.
I am NO longer able to reply to all e-mails due to the volume and other things
going on in my life (all good). I do love hearing from others, but an unable to
reply to all individually. This web site was Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time. Yes, there is wireless internet and we have tried that a number of places. But, if I deal with email when we are away from home then it is not a "restful vacation" for me. PLEASE use the SEARCH capability at the top my pages. You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.
To speak with
a person
please know you may call the “telephone information and support line” of the
Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4
p.m. Eastern Time at + + + + + + + + + + CCF - Serving the
carcinoid/NETs patient and medical community for close to forty
years (chartered in 1968) * * * * * * * * * * DISCLAIMER: I am a patient and NOT a medical doctor or health care professional. I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories. I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals. "Sunny" Susan Anderson Copyright © 1997-2008 Susan L. Anderson. All Rights Reserved. |
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Send mail to
SunnySusan@cox.net with
questions or comments about this web site.
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