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Resource Library
Updated:
November 8, 2008
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Miracle House
(place to stay when travel to seek consultation and / or treatment)
RxMed - Family Physicians Site -
drug monographs
RxList - The Internet Drug Index
PharmWeb - Drug Information
The On-Line Medical Dictionary from
Cancer Web
Medical Glossary
Medical Dictionary from MedicineNet
General Medical Resources on the Internet
Ochsner Neuroendocrine Tumor
Team
Cancer Net
(formerly People Living With Cancer)
DocFinder - Assoc. of State Medical Board
Executive Directors
Univ. of Penn.'s OncoLink
Tumor Atlas
Irritable Bowel Syndrome
Medical Encyclopedia via MEDLINE
plus
Assisted Living Directory
Diagnostic
Imaging (useful for ALL people, not just those with cancer)
Laboratory
Tests (useful for ALL people, not just those with cancer)
Lab Tests On-Line
Journal of the American Medical Assoc. (JAMA)
Society of Interventional Radiology
(they do CE's and RFA's)
American Society of
Clinical Oncology (ASCO)
The Dartmouth Atlas of Health Care
Society of Nuclear Medicine
Standard clinical
guidelines for various procedures
Web MD -
more general medical information
Revolution
Health
National Organization of Rare Diseases
American Medical
Association
DocFinder - Assoc. of State Medical Board Executive Directors
Medicine Online
National Institute of Health's Office of
Alternative Medicine
Oncology information - Online action
against cancer
Today's
Caregiver Online
Advance Care Planning: Dorothy Garske
Foundation
Actos (for diabetes)
Metformin (for diabetes)
AZ Hospice & Palliative Care
Nutritional Concerns For The Carcinoid Patient
Cancer & Nutrition
ASK The Dietitian: The Site for
Sound Nutritional Advice
Center for Science in the Public Interest -
Nutrition Action Healthletter
CyberDiet - answers questions about foods and a healthy lifestyle
Blonz Guide to Nutrition, Food and Health
Resources
Therapeutic Humor
Quack Watch -- battles health related (including diet) frauds, myths, fads, and
fallacies - VERY IMPORTANT!
National
Institute of Neurological Disorders and Stroke
(with warning signs)
Nutrition and Fast Food Facts
Implanted Venous Access Ports
Patient Advocate
Foundation
I "Sunny Susan" was invited to write
a Blog
on the web site of the Arizona Republic
newspaper as they have liked letters I have
written to the editors over the years.
March 26, 2008 was my first Blog.
I shall write additional articles, but not
on a set schedule.
You may go to my Blog at
http://www.AZcentral.com/members/Blog/sunnysusan
May need to go to archive for each month on right side
below my photo to open older Blogs.
Once-Monthly Somatostatin Analogue Increases Overall Survival
in Carcinoid Syndrome, published May 16, 2005 in Medical News Today by Dr.
Lowell Anthony.
Click here
A 5-Decade Analysis of 13,715 Carcinoid Tumors, published 2003
in The American Cancer Society by Dr. Irv Modlin, et. al. it is available at
www.pubmed.gov _ (http://www.pubmed.gov)
and search the title. Notice in the full article -- the survival
increased when Sandostatin was introduced.
Interviews on video made at the 2004 New
Orleans Carcinoid Conference
Some of the things discussion are answers to questions commonly asked by
newly diagnosed patients
Eugene A. Woltering, MD., Gregory D. Espenan, M.D., Daniel Frey, M.D.,
Susan Anderson, Carol-Anne Wilson, Jim Weiveris
Click here for the
video interviews
Susan: Why did you decide to create your own Web site?
Susan: What is your current state of health?
Susan: How often do you have your carcinoid disease indicators checked?
Two additional video questions and replies from Susan on the web site (click
here)
Susan Anderson's Home Library of Cancer / Healing / Wellness /
Medical Books .... Updated: December 6, 2006
Information for your
medical doctor and other medical professionals from Carcinoid Cancer Foundation
General Information About Carcinoid and Related
Neuroendocrine Tumors -- WITH A BIG THANK YOU TO THE Carcinoid Cancer Foundation
(CCF) Click here:
Information and Published Papers for the MEDICAL
PROFESSIONALS General Information About
Carcinoid and Related Neuroendocrine Tumors.
This section contains links to websites and
full-text and abstract versions of published papers that focus on general
information (reviews) of diagnosis, treatment and current research in the field
of carcinoid and neuroendocrine tumors.
Thank you to the Carcinoid Cancer Foundation,
Inc. (CCF), for giving me permission to link directly to this important
consensus report below.
Consensus Report on the Use of Somatostatin Analogs for
the Management of Neuroendocrine Tumors of the Gastroenteropancreatic System By K. Öberg, L. Kvols, M. Caplin, G.
Delle Fave, W. de Herder, G. Rindi, P. Ruszniewski, E. A. Woltering, and B.
Wiedenmann Annals of Oncology 15: 966–973, 2004.
"This
consensus report gives a detailed description of the use of somatostatin analogs
in the management of neuroendocrine tumors of the gastroenteropancreatic system.
As background information we have outlined critical aspects of the pathology,
the use of tumor markers, a definition of functional and non-functional
digestive neuroendocrine tumors, different imaging modalities, surgical
considerations, liver embolization and the use of cytotoxic drugs as well as
interferon. Included in the report is an overview of somatostatin, somatostatin
analogs and its receptor expression in different neuroendocrine tumors. It will
also define the binding affinities of different somatostatin analogs to the five
different subtypes of somatostatin receptor. We compare the efficacy of
octreotide and lanreotide in reducing diarrhea and flushing. Side-effects are
described and we provide practical information on somatostatin analog
treatment."
Click here to email me SunnySusan@Cox.Net
(Please see below)
Since
1996 --- when I first located others with Carcinoid --- I have answered
every email sent to me, although some replies were delayed longer than I liked.
I am NO longer able to reply to all e-mails due to the volume and other things
going on in my life (all good). I do love hearing from others, but an unable to
reply to all individually. This web site was
10 years old on April 27,
2007, and my plan is to keep it updated for many many years to come.
Since my husband "retired" I am away from my computer for days, and
sometimes, weeks at a time. Yes, there is wireless internet and we have
tried that a number of places. But, if I deal with email when we are away
from home then it is not a "restful vacation" for me.
PLEASE use the SEARCH
capability at the top my pages. You may search for a word, a phrase, a
drug, a treatment, a book title or anything you can think of. You may search
this site only, or search the complete World Wide Web.
To speak with
a person
please know you may call the “telephone information and support line” of the
Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4
p.m. Eastern Time at
1-888-722-3132 (free) or 1-914-693-1001. “The
information and support line” is staffed by medical professionals. Mondays and
Fridays are research days, if you call then and do not reach a person do leave a
clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at
http://www.carcinoid.org
+ + + + + + + + + +
CCF - Serving the
carcinoid/NETs patient and medical community for close to forty
years (chartered in 1968)
“Meets Extensive Standards of America’s Most Experienced
Charity Evaluator”
Better Business Bureau
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DISCLAIMER: I am a patient and NOT a medical
doctor or health care professional. I share information and links to
information that has been helpful to me and that I believe to be correct and
good, but I cannot guarantee the accuracy of this information, except for MY
stories. I urge you not to rely only on this information but I believe
you should discuss your situation and information with your medical doctors
and/or other medical professionals.
"Sunny" Susan Anderson
Copyright © 1997-2008 Susan L. Anderson. All Rights Reserved.
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