Updated: November 28, 2011
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Many of these are NEW links although
same topic!
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NEW -
The Carcinoid Heart Center
- NEW
2nd
Worldwide NET Cancer Awareness Day November 10, 2011
Association
of Cancer Online Resources
R. A. Bloch Cancer Foundation, Inc.
Cancer Net
(formerly People Living With Cancer)
Revolution
Health
National Coalition for Cancer
Survivorship (NCCS)
Medical Imaging
Journey of The Heart - A Healing Place
in CyberSpace
An Inspirational Guide for the
Recovering Soul
National Cancer Institute 800-4-CANCER
(800-422-6237)
Coping from National Cancer
Institute
Cancer Support from National Cancer Institute
The
Wellness Community (National information)
Exceptional Cancer Patients
People Living With Cancer
National Coalition for Cancer
Survivorship (NCCS)
National Family Caregivers Association (NFCA)
Quack Watch -- battles health related
(including diet) frauds, myths, fads, and fallacies -
VERY IMPORTANT!
Today's Caregiver Online
Advance Care Planning: Dorothy Garske
Foundation
AZ Hospice & Palliative Care
Cancer & Nutrition
ASK The Dietitian: The Site for Sound Nutritional Advice
Center for Science in the Public Interest - Nutrition Action Healthletter
CyberDiet - answers questions about foods and a healthy lifestyle
Blonz Guide to Nutrition, Food and Health Resource
Fast Food facts
Patient Advocate
Foundation
Field
Guide to Wildlife of Cancer
Lyrica (for neuropathy)
“Ode to Noids”
Wonderful song by David in
the UK
See and hear it on YouTube
http://www.youtube.com/mundivagante
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The Carcinoid Poem
click here
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I "Sunny Susan" was invited to write
a Blog
on the web site of the Arizona Republic
newspaper as they have liked letters I have
written to the editors over the years.
March 26, 2008 was my first Blog.
I have written additional articles, but not
on a set schedule. You may go to my Blog at
http://www.AZcentral.com/members/Blog/sunnysusan
May need to go to archive for each month on right side
below my photo to open older Blogs.
05/12/2008
Poem: Friends Without Faces
http://www.azcentral.com/members/Blog/sunnysusan/23352
05/12/2008
13th Anniversary of Carcinoid Diagnosis May 10, 1995
http://www.azcentral.com/members/Blog/sunnysusan/23351
04/28/2008
Neuroendocrine Tumor assistance via web page for 11 + years
http://www.azcentral.com/members/Blog/sunnysusan/22544
04/19/2008
Book Discussions in Arizona (1983 – 2008)
http://www.azcentral.com/members/Blog/sunnysusan/21868
04/10/2008
The Best Things In
Life...Aren't Things
http://www.azcentral.com/members/Blog/sunnysusan/21236
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NANETS Guidelines February
7, 2011
NET Guidelines
from NANETS (North American NeuroEndocrine Tumor Society)
http://nanets.net/research/articles/nanets-guidelines
The
culmination of years of dedicated efforts by a host of worldwide experts,
the NANETS (North American NeuroEndocrine Tumor Society) consensus
guidelines present an up-to-date synthesis of the best available knowledge
on the classification, diagnosis, and treatment of NETs. Please share these
guidelines with any physician or healthcare professional who might benefit
from this important resource.
NANETS - NANETS Guidelines
nanets.net
·
The North American Neuroendocrine Tumor Society (NANETS) Guidelines:
Mission, Goals, and Process.
Authors: Kvols, Larry K. MD *; Brendtro, Kari L. +
DOI: DOI: 10.1097/MPA.0b013e3181eb7451
·
The Pathologic Classification of Neuroendocrine Tumors: A Review of
Nomenclature, Grading, and Staging Systems.
Authors: Klimstra, David S. MD *; Modlin, Irvin R. MD, PhD
+; Coppola, Domenico MD ++; Lloyd, Ricardo V. MD, PhD [S]; Suster, Saul MD
[//]
DOI: DOI: 10.1097/MPA.0b013e3181ec124e
·
NANETS Consensus Guidelines for the Diagnosis of Neuroendocrine Tumor.
Authors: Vinik, Aaron I. MD, PhD *; Woltering, Eugene A. MD
+; Warner, Richard R. P. MD ++; Caplin, Martyn MD [S]; O'Dorisio, Thomas M.
MD [//]; Wiseman, Gregory A. MD [P]; Coppola, Domenico MD #; Go, Vay Liang
W. MD **
DOI: DOI: 10.1097/MPA.0b013e3181ebaffd
·
NANETS Treatment Guidelines: Well-Differentiated Neuroendocrine Tumors of
the Stomach and Pancreas.
Authors: Kulke, Matthew H. MD *; Anthony, Lowell B. MD +;
Bushnell, David L. MD ++; de Herder, Wouter W. MD, PhD [S]; Goldsmith,
Stanley J. MD [//]; Klimstra, David S. MD [P]; Marx, Stephen J. MD #;
Pasieka, Janice L. MD **; Pommier, Rodney F. MD ++; Yao, James C. MD ++++;
Jensen, Robert T. MD [S][S]
DOI: DOI: 10.1097/MPA.0b013e3181ebb168
·
The NANETS Consensus Guideline for the Diagnosis and Management of
Neuroendocrine Tumors: Well-Differentiated Neuroendocrine Tumors of the
Jejunum, Ileum, Appendix, and Cecum.
Authors: Boudreaux, J. Philip MD *; Klimstra, David S. MD
+; Hassan, Manal M. MD, PhD ++; Woltering, Eugene A. MD *; Jensen, Robert T.
MD [S]; Goldsmith, Stanley J. MD [//]; Nutting, Charles DO [P]; Bushnell,
David L. MD #; Caplin, Martyn E. MD **; Yao, James C. MD ++
DOI: DOI: 10.1097/MPA.0b013e3181ebb2a5
·
The NANETS Consensus Guidelines for the Diagnosis and Management of
Gastrointestinal Neuroendocrine Tumors (NETs): Well-Differentiated NETs of
the Distal Colon and Rectum.
Authors: Anthony, Lowell B. MD *; Strosberg, Jonathan R. MD
+; Klimstra, David S. MD ++; Maples, William J. MD [S]; O'Dorisio, Thomas M.
MD [//]; Warner, Richard R.P. MD [P]; Wiseman, Gregory A. MD #; Benson, Al
B. III MD **; Pommier, Rodney F. MD ++
DOI: DOI: 10.1097/MPA.0b013e3181ec1261
·
The North American Neuroendocrine Tumor Society Consensus Guideline for the
Diagnosis and Management of Neuroendocrine Tumors: Pheochromocytoma,
Paraganglioma, and Medullary Thyroid Cancer.
Authors: Chen, Herbert MD *; Sippel, Rebecca S. MD *;
O'Dorisio, M. Sue MD, PhD +; Vinik, Aaron I. MD, PhD ++; Lloyd, Ricardo V.
MD, PhD [S]; Pacak, Karel MD, PhD, DSc [//]
DOI: DOI: 10.1097/MPA.0b013e3181ebb4f0
·
NANETS Consensus Guideline for the Diagnosis and Management of
Neuroendocrine Tumors: Well-Differentiated Neuroendocrine Tumors of the
Thorax (Includes Lung and Thymus).
Authors: Phan, Alexandria T. MD *; Oberg, Kjell MD, PhD +;
Choi, Junsung MD ++; Harrison, Lynn H. Jr MD [S]; Hassan, Manal M. MD, PhD
[//]; Strosberg, Jonathan R. MD [P]; Krenning, Eric P. MD, PhD #; Kocha,
Walter MD **; Woltering, Eugene A. MD ++; Maples, William J. MD ++++
DOI: DOI: 10.1097/MPA.0b013e3181ec1380
The NANETS Consensus Guidelines for the Diagnosis and Management of Poorly
Differentiated (High-Grade) Extrapulmonary Neuroendocrine Carcinomas.
Authors: Strosberg, Jonathan R. MD *; Coppola, Domenico MD
+; Klimstra, David S. MD ++; Phan, Alexandria T. MD [S]; Kulke, Matthew H.
MD [//]; Wiseman, Gregory A. MD [P]; Kvols, Larry K. MD *
DOI: DOI: 10.1097/MPA.0b013e3181ebb56f
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Click here to email me
SunnySusan@Cox.Net (Please see
below)
Please read last section on this page - below.
Thank you, Susan, 1-26-2009
Since
1996 --- when I first located others with
Carcinoid --- I have answered every email sent to me, although some replies were
delayed longer than I liked. I am NO longer able to reply to all e-mails due to
the volume and other things going on in my life (all good). I do love hearing
from others, but an unable to reply to all individually. I shall not forget my
many Carcinoid friends and of course shall reply to you … as time permits.
This
web site was 14 years old on April 27, 2011, and my plan is to keep it updated
for many years to come.
Since my husband "retired"
I am away from my computer for days, and sometimes, weeks at a time. Yes, there
is wireless internet and we have tried that a number of places. But, if I deal
with email when we are away from home then it is not a "restful vacation" for
me.
PLEASE
use the SEARCH
capability at the top my pages. You may search for a word, a phrase, a drug, a
treatment, a book title or anything you can think of. You may search this site
only, or search the complete World Wide Web.
To speak with
a person
please know you may call the “telephone information and support line” of the
Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4
p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The
information and support line” is staffed by medical professionals. Mondays and
Fridays are research days, if you call then and do not reach a person do leave a
clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at
http://www.carcinoid.org
CCF - Serving
the carcinoid/NETs patient and medical community for close to forty
years (chartered in 1968)
“Meets Extensive Standards of America’s
Most Experienced Charity Evaluator”
Better Business Bureau
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*
DISCLAIMER:
I am a patient and
NOT a medical doctor or health care professional. I share information and
links to information that has been helpful to me and that I believe to be
correct and good, but I cannot guarantee the accuracy of this information,
except for MY stories. I urge you not to rely only on this information
but I believe you should discuss your situation and information with your
medical doctors and/or other medical professionals.
"Sunny" Susan Anderson
+ + + + + + + + + +
Return to top of home page
Copyright 1997 -- 2011 and beyond by Susan L. Anderson
