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CARCINOID CANCER

A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

 

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COPING WITH CANCER

 Updated: January 26, 2009

Please read last section on this page - below.  Thank you, Susan, 1-26-2009

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Association of Cancer Online Resources

R. A. Bloch Cancer Foundation, Inc.

Cancer Net (formerly People Living With Cancer)

Revolution Health

National Coalition for Cancer Survivorship (NCCS)

Journey of The Heart - A Healing Place in CyberSpace

 Fran Lenzo Writing from the Heart

An Inspirational Guide for the Recovering Soul  

National Cancer Institute  800-4-CANCER   (800-422-6237)

Coping from National Cancer Institute

Cancer Support from National Cancer Institute

Hospice with world-wide listings

The Wellness Community   (National information)

Exceptional Cancer Patients

People Living With Cancer


Dr. (C. Everett) Koop's Community

Laparoscopic Gallbladder Surgery

National Coalition for Cancer Survivorship (NCCS)

National Family Caregivers Association (NFCA)


Quack Watch -- battles health related (including diet) frauds, myths, fads, and fallacies - VERY IMPORTANT!

Today's Caregiver Online

Advance Care Planning: Dorothy Garske Foundation
 

AZ Hospice & Palliative Care

Cancer & Nutrition

ASK The Dietitian: The Site for Sound Nutritional Advice

Center for Science in the Public Interest - Nutrition Action Healthletter

CyberDiet - answers questions about foods and a healthy lifestyle

Blonz Guide to Nutrition, Food and Health Resource

Fast Food facts

Friend to Friend Program

Patient Advocate Foundation


Field Guide to Wildlife of Cancer

Lyrica (for neuropathy)

NEW - “Ode to Noids” - NEW

Wonderful song by David in the UK

See and hear it on YouTube

http://www.youtube.com/mundivagante

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The Carcinoid Poem click here

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NEW - I "Sunny Susan" was invited to write a Blog on the web site of the Arizona Republic newspaper as they have liked letters I have written to the editors over the years.  March 26, 2008 was my first Blog.  I have written additional articles, but not on a set schedule.  You may go to my Blog at http://www.AZcentral.com/members/Blog/sunnysusan

May need to go to archive for each month on right side
below my photo to open older Blogs.

05/12/2008  Poem: Friends Without Faces
http://www.azcentral.com/members/Blog/sunnysusan/23352

05/12/2008  13th Anniversary of Carcinoid Diagnosis May 10, 1995
http://www.azcentral.com/members/Blog/sunnysusan/23351

04/28/2008  Neuroendocrine Tumor assistance via web page for 11 + years
http://www.azcentral.com/members/Blog/sunnysusan/22544

04/19/2008  Book Discussions in Arizona (1983 – 2008)
http://www.azcentral.com/members/Blog/sunnysusan/21868

04/10/2008  The Best Things In Life...Aren't Things
http://www.azcentral.com/members/Blog/sunnysusan/21236
 

04/01/2008  Living a full active life with a rare cancer
http://www.azcentral.com/members/Blog/sunnysusan/20589

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Click here to email me SunnySusan@Cox.Net (Please see below)

Please read last section on this page - below.  Thank you, Susan, 1-26-2009


Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good).  I do love hearing from others, but an unable to reply to all individually.  I shall not forget my many Carcinoid friends and of course shall reply to you … as time permits.  This web site was 11 years old on April 27, 2008, and my plan is to keep it updated for many years to come.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time.  Yes, there is wireless internet and we have tried that a number of places.  But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages.  You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday  10 a.m. to 4 p.m. Eastern Time at  1-888-722-3132 (free) or 1-914-693-1001.   “The information and support line” is staffed by medical professionals.   Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message.  The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

CCF -  Serving the carcinoid/NETs  patient and medical community for close to forty years (chartered in 1968)
   “Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau


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DISCLAIMER:  I am a patient and NOT a medical doctor or health care professional.  I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories.  I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals.  "Sunny" Susan Anderson

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Copyright 1997 -- 2009 and beyond by Susan L. Anderson
 


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Last modified: 08/11/09