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CARCINOID CANCERA rare form of "slow-growing" neuroendocrine cancerSusan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness |
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Past SeminarsConferences 1999 - 2012
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http://www.carcinoid-newengland.org/
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Many of these are NEW links
although same topic!
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May 4 - 6, 2012: Ottawa, Canada,
International
Carcinoid/NeuroEndocrine Conference.
"Closing the Gap Between What Is and What Can Be For the NET Community."
Fairmont Chateau Laurier
Click on any "thumbnail" for a larger picture.
Photographs posted May 12, 2012.
Click here
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2011 Halifax Carcinoid NeuroEndocrine Conference
for Patients and Medical Professionals
A
global meeting on international cooperation and public health
policies focussing on research, diagnosis, development
of and access to treatment, and care for rare diseases,
will be held in Tokyo (May,
21-23, 2011)
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2010
Alexandria, Virginia Carcinoid and Neuroendocrine Tumor Patient Conference
at the
Crowne Plaza Old Town
in
Alexandria, Virginia
from
8:00 a.m. to 5:00 p.m. on
September 25th.
sponsored by
InterScience Institute (ISI)
and the
Carcinoid Cancer Awareness Network (CCAN).
“A
Multidisciplinary Approach to the Diagnosis, Treatment and
Monitoring of NETs.”
The guest speakers and
their topics are:
· Dr. Eugene Woltering, Neuroendocrine Cancer Patients – A Personalized Approach to Choosing the Best Course of Treatment
· Dr. Aaron Vinik, Neuroendocrine Tumors: Recognition, Potential New Therapies and a Look at the Future
· Paris Mamikunian, The Science Behind the Tests – Assessing NET Patient Biomarkers
· Robert Wahmann, New Advances in World NET Patient Advocacy
· Dr. Thomas O’Dorisio, Choosing Options of Care and the Value of Tumor Markers in the Process
· Dr. Vay Liang W. Go, Nutrition and Gastroenteropancreatic Neuroendocrine Tumors (GEP-NETs)
For further information or to register,
contact the
Carcinoid Cancer Awareness
Network,
toll-free at 1-866-850-9555,
www.carcinoidawareness.com
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Please register for the May 13-16, 2010, Vancouver International CNETS Canada Conference for patients and med professionals.
The Vancouver Conference tentative program is now on the CNETS Canada website at www.cnetscanada.org.
This program will be instrumental in moving the needs of the International Carcinoid NET patient community forward. And we would love to see you in Vancouver. It is a really great place as the Winter Olympics will demonstrate.
We feel that our program is 90% complete. We will add more information as we get it.
So please register for the Vancouver International
Conference online at
www.cnetscanada.org . We can also help you register offline if you like.
Please just email
info@cnetscanada.org with questions or if you need help.
Dates are May 13-16, 2010.
Please go to www.cnetscanada.org and register for the conference. We only have room for a total of 370 people including faculty so you may want to register before all the spaces are gone. A number of people actually booked before this programme came out and we thank you for your trust in our ability to generate an effective conference.
Maureen Coleman, President, CNETS Canada
4103-3219 Yonge St., Toronto, ON
M4N 3S1
416-544-8467 416-788-6879
www.cnetscanada.org
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2009 National Carcinoid / NET Patient Conference
Thursday - Saturday
September 24 - 26, 2009
Astor Crowne Plaza
739 Canal Street, New Orleans, LA
Registration limited to 500
For all details & registration click on line below
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Northern California Carcinoid-Neuroendocrine Tumor
Support Group
Presents
Current Treatment and Diagnosis of Carcinoid - Neuroendocrine Tumors
A Symposium for Healthcare Professionals, Patients and Caregivers
Saturday, February 7, 2009
8:00 am – 3:00 pm
Marriott Hotel
2355 North Main St., Walnut Creek, CA
Guest Speakers
Edda Gomez-Panzani, MD
Carcinoid Syndrome and Carcinoid Crisis
Vice President Clinical Sciences – Neurendocinology Ipsen Pharmaceuticals
Background in trauma surgery - Drug research and development for over 15 years
Eugene Woltering MD
Update for Treatment and Diagnosis of NET’s
and recent work on Angiogenesis and Metastasis
James D. Rives Professor of Surgery and Neuroendocrine
Louisiana State University Health Sciences Center, New Orleans, Louisiana
Q&A: Physician Panel
Patient Afternoon Session
Specifics TBA
Registration 8:00-8:45 am
Refreshments
RSVP by January 14, 2009
This symposium has been made possible through the generous gifts of NCCN members
The Carcinoid Cancer Foundation, New York, NY
Carcinoid Cancer Awareness Network, New York, NY
Special thanks to Brian Bowe, for the NCCN Logo
Registration Fee
$15.00 per person or $25.00 per couple
Limited scholarships are available
Contact Jeanette at carcinet2@sbcglobal.net to apply
Rooms available at $105.00 a night,
Single or double occupancy
Space limited, mention NCCN for special rate
Reserve before January 7, 2009
by calling the Marriott Hotel at (925) 934-2000
To register complete the following form and email to: carcinet2@sbcglobal.net or mail completed form to: NCCN Symposium, 3078 Stagecoach Rd., Placerville, CA 95667
Name: __________________________________________________________________
Address/City/State: _______________________________________________________
Contact phone: ___________________________________________________________
Email address: ___________________________________________________________
Optional: Primary site: _____________________________________________________
Send your registration fee to:
NCCN
c/o Debra Wilson Treasurer
3078 Stagecoach Rd., Placerville, CA 95667
Make checks or money orders payable to: Debra Wilson/NCCN (treasurer)
Or
Pay on line at: www.paypal.com
Click "Send Money", in the "To:" field enter register@carcinoid_net.org, complete form and follow instructions. In “Message to recipient” please include your name, guest name address and phone number in case we need to contact you.
For questions or more information contact:
Jeanette Shaffner
(530) 822-5422
We look forward to your joining us for a spectacular informative filled day
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THE CARCINOID AWARENESS NETWORK (CCAN) IS GOING TO HELP WITH REGISTRATION AND WILL HELP US PROVIDE THE DAY TO DAY WORKER BEES TO MAN THE REGISTRATION DESKS ETC. ANYONE ONE WHO KNOWS THESE FOLKS KNOW THAT THIS WILL MEAN THAT EVERYTHING WILL RUN SMOOTHLY.
We are in the process of contacting corporate sponsors to help make this conference happen. Again -- (like the last time) breakfast and lunch on Friday and Saturday and the munchies at the Thursday evening mixer will be part of the registration cost (TBA). You will be on your own for dinner on Thursday (if you are still hungry - after the social event --- but if you were here last time I think that you won't be hungry) and will be on your own on Friday and Saturday for dinner.
We will have to guarantee the A-C-Plaza 200 room nights on Thursday and Friday and Saturday and we will limit registration to the first 500 folks who sign up. As you know the Portland and Norfolk conferences had waiting lists so don't be a "I SHOULD OF "--- PERSON.
Stay tuned for specific meeting registration information and how to sign up for room registration at the Astor Crowne Plaza.
Let's all take a moment to thank the folks who are helping us do this --- the Kenner Ochsner team and the CCAN team!!! More "thank ya'alls" will be coming as I enlist more sponsors.
Put this on your schedule RIGHT now---you will forget this if you = don't do it now!!!!
Please pass this along to all of your support groups, on line groups (yahoo – ACOR - etc) and tell your docs and their staffs.
While this is not a CME conference ---- it is perfect for the doc or office staff who wants to learn about NETS so that they can take better care OF YOU!!!!!
PLUS IT IS IN NEW ORLEANS -- the most fun city in the world ----- smile -- unlike Las Vegas -- what happens in New Orleans remains buried in the swamp ---- FOREVER!
Eugene A. Woltering MD
FACS
The James D. Rives Professor of Surgery and Neurosciences
LSUHSC Department of Surgery
New Orleans LA 70112
504-884-3555-cell
Clinic address: 200 West Esplanade Ave, Suite 200, Kenner La 70065
504-464-8500 - clinic appointments
504-464-8525 -clinic fax
1-866-91-ZEBRA (1-866-919-3272)
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New book for the medical community:
Neuroendocrine Tumors: A Comprehensive Guide To Diagnosis and Management published by Inter Science Institute.
Authors:
Eugene A. Woltering, MD, FACS; Aaron I. Vinik, MD, PhD, FCP, MACP; Vay Liang W. (Bill) Go, MD; Thomas M. O’Dorisio, MD.
Those attending the Carcinoid Conference in
Portland, OR
Sept. 28 - 30, 2006
received a copy of this book on CD in their registration packets.
I++++++++++
September 22, 23, 24, 2005, Carcinoid Conference,
Philadelphia, PA
September 28, 29, 30, 2006, National Carcinoid / NET Conference,
Portland, OR
May 4 - 6 , 2012, Ottawa, Canada, International Carcinoid/Neuroendocrine Conference
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Registration closed on July 5
for the
2010 San Francisco Carcinoid and Neuroendocrine Tumor Patient Conference,
sponsored by
InterScience Institute (ISI)
and the
Carcinoid Cancer Awareness Network (CCAN).
“A
Multidisciplinary Approach to the Diagnosis, Treatment and
Monitoring of NETs.”
The conference will be held
on Saturday,
July 17th at the
Crowne Plaza San Francisco International Airport Hotel in Burlingame,
California, from 8:00 a.m. to 5:00 p.m.
The guest speakers
Dr. Eugene Woltering,
Neuroendocrine Cancer Patients – A Personalized Approach to Choosing the Best
Course of Treatment
Dr. Aaron Vinik,
Neuroendocrine Tumors: Recognition, Potential New Therapies and a Look at the
Future
Paris Mamikunian,
The Science Behind the Tests – Assessing NET Patient Biomarkers
Robert Wahmann,
New Advances in World NET Patient Advocacy
Dr.
Thomas O’Dorisio,
Choosing Options of Care and the Value of Tumor Markers in the Process
Dr. Vay Liang W. Go,
Nutrition and Gastroenteropancreatic Neuroendocrine Tumors (GEP-NETs)
For those on the East Coast, the same
conference will be presented
at the
Crowne Plaza Old Town
in
Alexandria, Virginia, from
8:00 a.m. to 5:00 p.m. on
September 25th.
For further information or to register, contact
the
Carcinoid Cancer Awareness
Network,
toll-free at 1-866-850-9555,
www.carcinoidwareness.org
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May 13-16, 2010, Vancouver International CNETS Canada Conference for patients and med professionals.
The Vancouver Conference tentative program is now on the CNETS Canada website
This program will be instrumental in
moving the needs of the International Carcinoid NET patient community forward.
And we would love to see you in Vancouver. It is a really great place as the
Winter Olympics will demonstrate.
We feel that our program is 90% complete. We will add more information as we get it.
So please register for the Vancouver
International Conference online at
www.cnetscanada.org.
We can also help you register offline if you like.
Please just email
info@cnetscanada.org with questions or if you need help.
Dates are May 13-16, 2010.
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It is with great pleasure that CCAN announces the 2009 National Patient
Conference video is now available to view on our web site
www.carcinoidawaren
Watch for
the announcement of The 6th Annual LI Conference video t
o be posted some in the next week or so. .
Carcinoid
Cancer Awareness Network
CCAN Inc
2480 Hull Ave
N. Bellmore NY 11710
516 781 7814
New Toll Free # 1 866 850 9555
carcinoidaware@aol.com
November is Carcinoid/NET Cancer Awareness Month in New York State. Come
celebrate with us!
Don't forget to visit to our website
www.carcinoidawaren
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Toronto, Canada, Conference October 16 - 19. 2008
23 presentations on-line (more coming)
Check them out at
www.cnetscanada.org the web site of the
The Carcinoid -Neuroendocrine Tumour Society Canada (CNETS CANADA)
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A Webinar with Dr. Richard R. P. Warner, MD
"
Carcinoid & NET'S : An Overview of Current Management in The United States"
To view this webinar
go to
www.carcinoidawaren
Click on replay webinar page (link on left side of page)
Dr. Richard R. P. Warner, M.D. is
Medical Director of the Carcinoid Cancer Foundation.
Professor of Medicine, at The Mount Sinai Hospital and School of Medicine
with his focus of activity entirely devoted to clinical practice,
teaching and development of a Center for Carcinoid and related
Neuroendocrine Tumors, at The Mount Sinai Hospital and School of Medicine
Email:
carcinoidaware@aol.com)
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Dr. Woltering's lecture on
the Carcinoid Cancer Foundation's
web site http://www.carcinoid.org,
along with other videos and transcripts from past lectures.
Direct link to this page is:
http://www.carcinoid.org/pcf/lectures/index.shtml
Or
The most recent lecture Dr.
W has given was of the Video recordings
from The Carcinoid Cancer Awareness (CCAN)
3rd annual patient conference November 11, 2007,
is now available online.
Access and view them from their website.
http://www.carcinoidawareness.org/
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Carcinoid Cancer Foundation, Inc. (CCF)
CCF 11th
Annual Carcinoid/NET's Conference
For patients, caretakers and medical professionals
"Progress in Research and Treatment" (poster)
April 13, 2008
Mount Sinai Hospital New York, NY
Guest Speakers:
Herbert Chen, M.D., University of Wisconsin Paul P. Carbone
Comprehensive Cancer Center
Madison, Wisconsin
Andrew S. Kennedy, M.D., Wake Radiology Oncology
Cary, NC;
Networking and survivor stories
For more information click on the following links:
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Carcinoid Conference in Harrisburg, PA!
Diagnosis and Treatment of Carcinoid Cancer: What We Need to Know.
Saturday, April 26, 2008, 9am - 4pm in Harrisburg, PA.
Featured speakers:
Dr. Matthew Kulke, Dr. Thomas O'Dorisio
and Judy Lyter, RN, MS, LPC.
Dr. Harold Harvey, moderator
Details, including the agenda, can be viewed at the
PCCAN.net website (see Conference)
The Carcinoid Cancer Awareness Network
http://www.carcinoi
Please register early-- on-line registration is available.
Teresa Lanza
Pennsylvania Carcinoid Cancer Advocacy Network
CarcinoidSupport@juno.com
717-576-5095
PCCAN.net
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Carcinoid Conference, Norfolk, VA Sept. 2007
NEW:
Webcasts from the Carcinoid NETs Conference in Norfolk Virginia
These recordings were produced at the Carcinoid NETs Conference 2007, held in Norfolk Virginia, and supported by the Carcinoid Cancer Foundation
The conference is now over, and we are uploading the files, so please keep checking here for the latest updates.
This Carcinoid NETs event , addressed a broad range of topics for an audience that included patients, caregivers and physicians. There were both daytime and evening presentations, so there are lots of materials to review.
The presentations require Flash and Windows Media Player. MP3 audio only versions are also available (just right click and 'Save As' to download these files).
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Pictures from the
Portland, OR
Carcinoid Conference, Sept. 2006
Portland, OR 2006
For some of the
presentations from some of these conferences please see: Conference
Presentations
click here
For photographs from some of these conferences please see: Pictures From
Conferences
click here
- May 4 - 6, 2012: Ottawa, Canada,
International Carcinoid/NeuroEndocrine
Conference.
Photographs now
posted under "Conference Pictures"
Photographs posted May 12, 2012.
Click here
- September 28 -30, 2006: Carcinoid
Conference, Portland, OR
Photographs now posted under "Conference
Pictures"
Photographs posted April
19, 2007. Click here
- September 22, 23, 24, 2005:
Carcinoid Conference, Philadelphia, PA
Photographs now posted under "Conference Pictures"
- April
20, 21, 22, 2005: The European Neuroendocrine Tumor Society (ENETS) Second
Annual Educational Conference for the Diagnosis and Treatment of
Neuroendocrine Tumors, Cracow, Poland
- November 20, 2004 -- 1st International Meeting of Patient Self-Help Groups
(ENETS) Berlin, Germany European Neuroendocrine Tumors Society (ENETS)
Click here
- November 15, 2004 -- UK NETwork 3rd National Neuroendocrine
Tumour Conference, London, England
Click here
- September 23, 24, 25, 2004 -- Carcinoid Conference, New Orleans,
LA
Click here
Interviews on video made at the 2004 New Orleans Carcinoid Conference Some of the things discussion are answers to questions commonly asked by newly diagnosed patients. Eugene A. Woltering, MD., Gregory D. Espenan, M.D., Daniel Frey, M.D., Susan Anderson, Carol-Anne Wilson, Jim Weiveris Click here for the video interviews These videos are no longer on-line!
Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good). I do love hearing from others, but an unable to reply to all individually. This web site was 15 years old on April 27, 2012, and my plan is to keep it updated for many years to come.
Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time. Yes, there is wireless internet and we have tried that a number of places. But, if I deal with email when we are away from home then it is not a "restful vacation" for me.
PLEASE use the SEARCH capability at the top my pages. You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.
To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4 p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The information and support line” is staffed by medical professionals. Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org
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CCF - Serving the
carcinoid/NETs patient and medical community for
more than forty
years (chartered in 1968)
“Meets Extensive Standards of America’s Most Experienced
Charity Evaluator”
Better Business Bureau
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SunnySusan@cox.net with
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