Carcinoid A rare form of "slow-growing" neuroendocrine cancer
Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness
ON-LINE SUPPORT GROUPS
Updated: 2 April 2016
of the diagnosis of my Carcinoid on 10 May 1995.
I am a 21 year survivor / winner!
This web site was 19 years old on April 27, 2016.
April 23, 2014
I began Dialysis
every evening at home
to view the 90 second book trailer video from YouTube!
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The ACOR CARCINOID Cancer On Line Support Group began 2 April 1997 -- now has more than 500 participants. This is a forum for questions, answers, factual information, tips on living with this type of cancer, treatments, shared experiences, a bit of humor, poetry, plus good things to think about, and a place to receive and give emotional support. The messages are archived for all to use. To join the ACOR Carcinoid Cancer On Line Support Group: CLICK HERE
CARCINOID (Yahoo) Online
Information and Discussion Group (NEW description)
This is an INFORMATION/DISCUSSION elist. This is NOT
a support group. As with all lists, the archives are available to anyone with a
password and username.
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MEN1 Support Group
NET Islet Cell Tumor Support
"We are here to share about all kinds of topics -- carcinoid (of course),
medical articles, health insurance, medicines, treatment options, member
experiences, symptom management, medical providers, case management, dealing
with doctors and other medical providers, Social Security Disability (Carcinoid
qualifies), emotional issues, family concerns, caregiver info and support,
understanding procedures, learning to be a better patient, dealing with a
chronic illness, specialty labs, and so much more. If you can think of it,
we can discuss it. We are all in this together."
Zollinger Ellison Syndrome (ZES). This is a support group for patients, caregivers, and family members. It is the hope of list owners to offer current information, support, and knowledge so we can all be "in the know", for only in knowledge can we truly be a partner with our health care team. Join us and welcome. CLICK HERE
Local support groups with a web site and/or communication via email
CARCINOID NEUROENDOCRINE SUPPORT GROUP
CARCINOID INITIATIVE (CCI)
Carcinoid Connection, Inc. (NECC)
CARCINOID SUPPORT GROUP
Awareness Network, Inc. (CCAN)
Carcinoid-NeuroEndocrine Tumor Association (MACNETA)
Cancer Advocacy Network (PCCAN),
Valley Carcinoid Connection
CANCER TEXAS SUPPORT (CCTS)
an on-line group for Canadians and some interested Americans.
Patients Organization in Poland
NET Patient Foundation
incorporating Living With Carcinoid (in the UK)
Carcinoid-Neuroendocrine Tumour Society-Canada (CNETS)
We are pleased to announce that the Association of Cancer Online Resources (ACOR) has agreed to host a Listserv called Carcinoid-Dr. Members of the Listserv communicate with each other by sending e-mails to the Listserv, which then distributes the messages to all other members. This Listserv was activated in February 2006.
Membership in this Listserv is limited to healthcare professionals. Carcinoid patients and their caregivers are welcome to tell the members of their medical team about this resource. Any healthcare professional who wishes to subscribe should send an e-mail to email@example.com
and describe their professional credentials and their reasons for joining, and provide their office address and phone number.
Feel free to share this information with other Carcinoid and neuroendocrine patients and their caregivers, as well as any healthcare professionals who you believe may be interested in participating in Carcinoid-Dr.
Please read last section on this page - below. Thank you, Susan, 1-26-2009
Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time. Yes, there is wireless internet and we have tried that a number of places. But, if I deal with email when we are away from home then it is not a "restful vacation" for me.
PLEASE use the SEARCH capability at the top my pages. You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.
To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4 p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The information and support line” is staffed by medical professionals. Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org
CCF - Serving
the carcinoid/NETs patient and medical community for nearly
years (chartered in 1968)
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Copyright © 1997-2016 Susan L. Anderson. All Rights Reserved.
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