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CARCINOID CANCER

A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

 

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click on any below
                                                                                                 
Updated:  August 11, 2009

Please read last section on this page - below.  Thank you, Susan, 1-26-2009

I "Sunny Susan" was invited to write a Blog on the web site of the Arizona Republic
newspaper as they have liked letters I have written to the editors over the years. 
March 26, 2008 was my first Blog.  I have written additional articles, but not
on a set schedule.  You may go to my Blog at: http://www.AZcentral.com/members/Blog/sunnysusan

See below on this page for some of the articles/Blogs.

PERSONAL STORIES (click on any below)

NM - Kathy's Story
CO - Nurse Jeanne Lambert's story 
CO - Second Nurse Jeanne Lambert's story

Jim Turner's Story (Carcinoid Heart Disease)
CA - Bill Evan's Story click here
Md - Larry's Carcinoid Story & web page

VA - Al's Carcinoid Story & web page
MI - Gary's Carcinoid Story & web page
AZ - My Carcinoid Story .... Susan L. Anderson
AUSTRALIA - Brett's Carcinoid Story & web page from Australia
AUSTRALIA - Eric Gully's story & web page
FRANCE - Lucien's Carcinoid Story from France
ENGLAND - Chrissy's Story from the UK
FL - Quality of Life page from breast cancer survivor
TX - Stu's experiences with RFA  Oct. 2000
Susan's pictures from the Carcinoid Conferences: Sarsaota (2000),
Tampa (2002), Santa Ana (2003) & New Orleans (2004)



WEB PAGES OF LOCAL CARCINOID SUPPPORT GROUPS
 (click on any below)

Capital Area Carcinoid Survivors (CACS) NEW- http://members.cox.net/cacsva/index.htm
Metro NY Carcinoid Support Group (MNYCSG)
The New England Carcinoid Connection 

CA -
SEA (Support, Education & Awareness for Carcinoid  Patients)
IL Chicagoland Carcinoid Fighters
MA - Dana-Farber & Harvard Medical School  Carcinoid & 
Neuroendocrine Support Group
CA - Neuroendocrine Cancer Fighters (NCF) mailing-list
PA Carcinoid Cancer Advocacy Network (PCCAN)
TX - CARCINOID CANCER TEXAS SUPPORT (CCTS)
UK  N
ET Patient Foundation incorporating Living With Carcinoid www.netpatientfoundation.com
    You will find a link to this web site of mine at
    www.netpatientfoundation.com/?page_id=49
England - the Royal Free Hospital Neuroendocrine tumour group
England -The Hammersmith Hospital Carcinoid and
    Neuroendocrine tumour service
Germany - BS NET e.V. Carcinoid Support Group (only in german )
 Carcinoid Patients Organization in Poland

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           I "Sunny Susan" was invited to write a Blog on the web site of the Arizona Republic
            newspaper as they have liked letters I have written to the editors over the years. 
            March 26, 2008 was my first Blog.  I have written additional articles, but not
           on a set schedule.  You may go to my Blog at   http://www.AZcentral.com/members/Blog/sunnysusan

May need to go to archive for each month on right side
below my photo to open older Blogs.

Date & Title of my Blogs  http://www.azcentral.com/members/Blog/sunnysusan/

05/23/2008  09:01 AM Senator Edward “Ted” Kennedy
http://www.azcentral.com/members/Blog/sunnysusan/24211
 

05/22/2008  03:24 PM  The Missing Man Formation
http://www.azcentral.com/members/Blog/sunnysusan/24148

05/22/2008  02:21 PM   It is the soldier ..... remember our veterans!
http://www.azcentral.com/members/Blog/sunnysusan/24144


05/12/2008 08:43 AM  Poem: Friends Without Faces
http://www.azcentral.com/members/Blog/sunnysusan/23352 

05/12/2008 08:40 AM 13th Anniversary of Carcinoid Diagnosis May 10, 1995
http://www.azcentral.com/members/Blog/sunnysusan/23351 

04/28/2008  02:50 PM Neuroendocrine Tumor assistance via web page for 11 + years
http://www.azcentral.com/members/Blog/sunnysusan/22544

04/19/2008  10:59 AM Book Discussions in Arizona (1983 – 2008)
http://www.azcentral.com/members/Blog/sunnysusan/21868

04/10/2008 11:09 AM: The Best Things In Life...Aren't Things
http://www.azcentral.com/members/Blog/sunnysusan/21236

04/01/2008 12:19 PM: Living a full active life with a rare cancer
http://www.azcentral.com/members/Blog/sunnysusan/20589

03/26/2008 08:36 AM: To Blog or not to Blog, that is the question
http://www.azcentral.com/members/Blog/sunnysusan/20097

You may go to my Blog by clicking on the line below or one
of the blue lines above: http://www.AZcentral.com/members/Blog/sunnysusan


May need to go to archive for each month on right side
below my photo to open older Blogs.

Interviews on video made at the 2004 New Orleans
Carcinoid Conference
  
Some of the things discussion are answers to questions commonly
asked by newly diagnosed patients.  Eugene A. Woltering, MD., Gregory D. Espenan, M.D., Daniel Frey, M.D., Susan Anderson (see below), Carol-Anne Wilson, Jim Weiveris
Click here for the video interviews

Susan: Why did you decide to create your own Web site?
Susan: What is your current state of health?
Susan: How often do you have your carcinoid disease
indicators checked?
Two additional questions and Susan's replies on the web site

TALENTED CARCINOID PATIENTS
CA - Wild Poppie's Crochet In Wire Jewelry Designs
AZ - Jim - Arizona Artist Specializing In Beautiful Landscapes
AZ - Jim - Painting My Cancer!


SOME NEWS ARTICLES (click on any below)
Nurse Jeanne Lambert's story  
Second Nurse Jeanne Lambert's story
TX - Dawn's story from San Antonio Express-News 8-26-02
AZ - Susan's article - from - Arizona Republic 10-07-99
"Exploring Carcinoid Tumors'  by Dr. Warner in Coping With
Cancer Magazine

Restaurateur's death puts focus on disease - The Tribune 1-9-02
Carcinoid in letters to the editor of USA Today


Memorial Pages for those who lost their
fight with Carcinoid

The Carcinoid Cancer Foundation
Reach for a Cure

 

Liz's Grove in memory of Elizabeth van Horn Taylor

Check the Memorial section on the Capital Area Carcinoid
Survivors (CACS) page

"Your Honored Stone" a tribute to Jill who lost her carcinoid
battle 3-11-00

Gerard Bond, 6-29-2005
 

The Carcinoid Cancer Foundation
Reach for a Cure


Return to top of homepage

Please read last section on this page - below.  Thank you, Susan, 1-26-2009


Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good).  I do love hearing from others, but an unable to reply to all individually.  I shall not forget my many Carcinoid friends and of course shall reply to you … as time permits.  This web site was 11 years old on April 27, 2008, and my plan is to keep it updated for many years to come.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time.  Yes, there is wireless internet and we have tried that a number of places.  But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages.  You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday  10 a.m. to 4 p.m. Eastern Time at  1-888-722-3132 (free) or 1-914-693-1001.   “The information and support line” is staffed by medical professionals.   Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message.  The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

CCF -  Serving the carcinoid/NETs  patient and medical community for close to forty years (chartered in 1968)
   “Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau

The Carcinoid Cancer Foundation
Reach for a Cure

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http://www.carcinoid.org/

Our mentor and guiding light is gone.  Monica shall be missed more than I can put into words!  Susan

ReachWeb

IN MEMORIAM
MONICA E. WARNER
May 16, 1937 – August 7, 2009

It is with profound sorrow that The Carcinoid Cancer Foundation Board of Directors and staff announce the death of Monica Warner, a driving force behind the foundation for over 20 years. Mrs. Warner died unexpectedly on Friday, August 7, 2009. We extend our deepest sympathy to Richard R.P. Warner, M.D., and his family on the passing of his beloved wife, Monica.

Since 1987 Mrs. Warner served as CCF’s Director of Development and Research Coordinator. She was instrumental in helping bring about the carcinoid cancer/neuroendocrine tumor support groups throughout the United States and was extremely proud to see the number of support groups grow from the first support group in 1996 to over 40 groups today.

Mrs. Warner was also solely responsible for The Carcinoid Cancer Foundation’s outstanding website. She created the site in 1996 and it grew under her leadership to serving individuals from 119 countries worldwide. Nearly 1,000,000 people have visited the CCF website since its inception.

In addition to her work with the foundation, Mrs. Warner was a registered dietitian, certified dietitian-nutritionist, and certified diabetes educator, with a Master of Science degree in Nutrition and Public Health from Columbia University in New York City and a Bachelor of Science degree in Food and Nutrition from Teachers College in Stockholm, Sweden. She had a private nutrition practice; worked at St. Agnes Hospital in White Plains from 1982 to 1987, where she was the Nutrition Education Coordinator; and served as an adjunct professor in nutrition at Westchester Community College. Earlier in her career she was a nutritionist for the Dairy Council of Metropolitan New York, a research nutritionist at Albert Einstein College of Medicine in the Bronx, and a clinical dietitian for the Swedish Consul General in New York City.

A Renaissance woman, Mrs. Warner had a wide variety of interests ranging from speaking four languages to a passion for both photography and flying. She earned her private pilot’s license in 1988 and flew several types of planes, including a stunt plane. Last summer, she participated in a National Geographic photography program in France, where her photographs were selected as among the best by trip participants. Her photographs have long been seen on the Carcinoid Cancer Foundation website, particularly from conferences throughout the United States and in Europe.

Mrs. Warner is survived by her husband Richard R.P. Warner, M.D., Professor of Medicine at The Mt. Sinai School of Medicine in New York and Medical Director of The Carcinoid Cancer Foundation; daughter Nancy Coste, her husband and their two children of Brussels, Belgium; son Charles Falker, his wife and their two children of New Rochelle, New York; Dr. Warner’s four children, Dr. Jon J.P. Warner, his wife and their four children of Weston, Massachusetts; Keith R.P. Warner and his daughter of Denver, Colorado; Douglas C.P. Warner, his wife and two children of Portland, Oregon; Lynn S. Unipan, her husband and their two children of Ambler, Pennsylvania; and longtime household member Elisabeth Herche. Mrs. Warner also has many brothers and sisters and extended family living in Sweden.

It was Mrs. Warner’s wish for continuation of the many activities of The Carcinoid Cancer Foundation and to enable this, donations can be made in her memory to The Carcinoid Cancer Foundation, 333 Mamaroneck Avenue, # 492, White Plains, NY 10605, or online at http://www.carcinoid.org (click on the Donate Now button on the home page) with a Visa, MasterCard or American Express, or by calling 888-722-3132, Tuesday through Thursday, 10 am to 4 pm, Eastern Time.

Services for Mrs. Warner were held privately.



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DISCLAIMER:  I am a patient and NOT a medical doctor or health care professional.  I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories.  I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals.  "Sunny" Susan Anderson

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Copyright © 1997-2009 Susan L. Anderson. All Rights Reserved.


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Copyright © 1997-2009 Susan L. Anderson. All Rights Reserved.
Last modified: 08/11/09