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CARCINOID CANCER

A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

 

Carcinoid
--My Story
-----Short Version
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--Monitoring Carcinoid
--Resource Library
--Coping
--Awareness
--Guest Book Archives
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Personal Stories

- Photographs - News Articles - Memorials
click on any below

Updated:  April 24, 2007

PERSONAL STORIES (click on any below)

NM - Kathy's Story
CO - Nurse Jeanne Lambert's story 
CO - Second Nurse Jeanne Lambert's story

Jim Turner's Story (Carcinoid Heart Disease)
CA - Bill Evan's Story click here
Md - Larry's Carcinoid Story & web page

VA - Al's Carcinoid Story & web page
MI - Gary's Carcinoid Story & web page
AZ - My Carcinoid Story .... Susan L. Anderson
AUSTRALIA - Brett's Carcinoid Story & web page from Australia
AUSTRALIA - Eric Gully's story & web page
FRANCE - Lucien's Carcinoid Story from France
ENGLAND - Chrissy's Story from the UK
FL - Quality of Life page from breast cancer survivor
TX - Stu's experiences with RFA  Oct. 2000
Susan's pictures from the Carcinoid Conferences: Sarsaota (2000),
Tampa (2002), Santa Ana (2003) & New Orleans (2004)



WEB PAGES OF LOCAL CARCINOID SUPPPORT GROUPS
 (click on any below)

Capital Area Carcinoid Survivors (CACS) (MD/DC/VA)
Metro NY Carcinoid Support Group (MNYCSG)
The New England Carcinoid Connection 

CA -
SEA (Support, Education & Awareness for Carcinoid  Patients)
IL Chicagoland Carcinoid Fighters
MA - Dana-Farber & Harvard Medical School  Carcinoid & 
Neuroendocrine Support Group
CA - Neuroendocrine Cancer Fighters (NCF) mailing-list
PA Carcinoid Cancer Advocacy Network (PCCAN)
TX - CARCINOID CANCER TEXAS SUPPORT (CCTS)
UK  N
ET Patient Foundation incorporating Living With Carcinoid www.netpatientfoundation.com
    You will find a link to this web site of mine at
    www.netpatientfoundation.com/?page_id=49
England - the Royal Free Hospital Neuroendocrine tumour group
England -The Hammersmith Hospital Carcinoid and
    Neuroendocrine tumour service
Germany - BS NET e.V. Carcinoid Support Group (only in german )
Connecticut Carcinoid Initiative
 Carcinoid Patients Organization in Poland

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NEW - I "Sunny Susan" was invited to write a Blog - NEW
               on the
web site of the Arizona Republic
            newspaper as they have liked letters I have
                written to the editors over the years. 
                   March 26, 2008 was my first Blog.
               I shall write additional articles, but not
          on a set schedule.  You may go to my Blog at http://www.AZcentral.com/members/Blog/sunnysusan

Interviews on video made at the 2004 New Orleans
Carcinoid Conference
  
Some of the things discussion are answers to questions commonly
asked by newly diagnosed patients.  Eugene A. Woltering, MD., Gregory D. Espenan, M.D., Daniel Frey, M.D., Susan Anderson (see below), Carol-Anne Wilson, Jim Weiveris
Click here for the video interviews

Susan: Why did you decide to create your own Web site?
Susan: What is your current state of health?
Susan: How often do you have your carcinoid disease
indicators checked?
Two additional questions and Susan's replies on the web site

TALENTED CARCINOID PATIENTS
CA - Wild Poppie's Crochet In Wire Jewelry Designs
AZ - Jim - Arizona Artist Specializing In Beautiful Landscapes
AZ - Jim - Painting My Cancer!


SOME NEWS ARTICLES (click on any below)
Nurse Jeanne Lambert's story  
Second Nurse Jeanne Lambert's story
TX - Dawn's story from San Antonio Express-News 8-26-02
AZ - Susan's article - from - Arizona Republic 10-07-99
"Exploring Carcinoid Tumors'  by Dr. Warner in Coping With
Cancer Magazine

Restaurateur's death puts focus on disease - The Tribune 1-9-02
Carcinoid in letters to the editor of USA Today


Memorial Pages for those who lost their
fight with Carcinoid

NEW - Liz's Grove in memory of Elizabeth van Horn Taylor

Check the Memorial section on the Capital Area Carcinoid
Survivors (CACS) page

"Your Honored Stone" a tribute to Jill who lost her carcinoid
battle 3-11-00

Gerard Bond, 6-29-2005

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Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good).  I do love hearing from others, but an unable to reply to all individually.  This web site was
10 years old on April 27, 2007, and my plan is to keep it updated for many many years to come.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time.  Yes, there is wireless internet and we have tried that a number of places.  But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages.  You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday  10 a.m. to 4 p.m. Eastern Time at  1-888-722-3132 (free) or 1-914-693-1001.   “The information and support line” is staffed by medical professionals.   Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message.  The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

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CCF -  Serving the carcinoid/NETs  patient and medical community for close to forty years (chartered in 1968)
   “Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau

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DISCLAIMER:  I am a patient and NOT a medical doctor or health care professional.  I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories.  I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals.  "Sunny" Susan Anderson

Copyright © 1997-2007 Susan L. Anderson. All Rights Reserved.


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Send mail to SunnySusan@cox.net with questions or comments about this web site.
Copyright © 1997-2008 Susan L. Anderson. All Rights Reserved.
Last modified: 04/14/08