CARCINOID CANCER

A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

    If you are starting a support group in your area and
would like to be listed, please let me know.
   Sunny Susan at:   SunnySusan@Cox.Net     
                                                                               Updated:  April 14, 2008

AOL Spam filters are interfering with delivery of Carcinoid-related
EMail. Click here for further information.

Please hit "reload", "refresh" or curved arrow back for the latest version, as with all sections of this web page and others, thank you.

PLEASE NOTE a list of those local support groups with a web site and/or communication via email follow these listings.  I hope to make a complete new section for this info ASAP.   NEW 1/26/08

* * * * * * * * * * * *

LOCAL CARCINOID & NEUROENDOCRINE
SUPPORT GROUPS

ARIZONA

ARIZONA CARCINOID TEAM (ACT)
Meet with others dealing with Carcinoid (themselves, or a
family member) in a casual informal setting.  Please feel free to join us.
Meeting every second Sat. of the month 1 to 3 p.m.
The Wellness Community of Central Phoenix
360 E. Palm Lane, Phoenix, AZ 85004-1531 
Phone 602-712-1006   Park in the rear parking lot 
For more information contact: 
Marilyn Burke at 480-926-0035 or
email her at:  marilyn@adventureboundtravel.com or
Sharon Miller at 602-316-8192 or email her at smiller870@juno.com

ARKANSAS

Carcinoid One on One
A support group for those dealing with carcinoid, their family, friends,
and caregivers.
Meets at 11 a.m. on Thursdays at the Mercy Cancer Center in Hot
Springs, AR. Contact for additional information:
Terri Wright, 501-760-2099 or terris12@sbcglobal.net

CALIFORNIA

NORTHERN CALIFORNIA NEUROENDOCRINE CANCER FIGHTERS (NCNCF)
A support group for survivors of Carcinoid, Pancreatic Islet cell, and related neuroendocrine cancers and for their caregivers, family and friends. The
group serves all of Northern California. The informal meetings provide an opportunity to gather for fellowship, sharing of experiences, support and information.
     Meets every month, second Saturday of the month, 1 p.m. to 4 p.m.. Meeting locations:
Odd-numbered months:  NorthBay Healthcare Foundation Office, 1455 Oliver
Rd., Suite 260, Fairfield, CA 94533 
Even-numbered months: O'Connor Hospital, 2105 Forest Ave., San Jose,
CA 95218
     The group also has an e-list. To join it go to: 
           NCNCF-subscribe@yahoogroups.com &     http://health.groups.yahoo.com/group/NCNCF/
Posts include meeting announcements and communication among group members.    Contact person: Katherine Arbanasin  karbanis@yahoo.com

NORTHERN CALIFORNIA CARCINOID NEUROENDOCRINE SUPPORT GROUP
NorCal CarciNet – (NCCN) An affiliate of Calif. Carcinoid Fighters - (CALCF)
Meeting: The Wellness Community, 3276 Mc Nutt Avenue, Walnut Creek, CA, 
For directions go to www.twc-bayarea.org
First met Nov. 3, 2007.   All future meetings will be held on
the third Saturday of every ODD numbered month.
Contact person: Jeanette Shaffner, phone: 530-822-5422,
cell: 916-709-0657, email: cancerfighter@sbcglobal.net
Web: www.carcinoid-net.org

CALIFORNIA CARCINOID FIGHTERS (CALCF) South Bay (Los Angeles)
Meeting the first Saturday of every month, 10:30 a.m. until 12:30 p.m..
The Wellness Community- So . Bay Cities
109 West Torrance Blvd., Redondo Beach, CA 90277
Spouses, friends, family, caregivers, etc. all invited.
If interested in joining or for further information please email:
Pat Gerenday  at:  carcinoidfighter@yahoo.com  or call 310-322-2540

COLORADO

NEW - Colorado Support Group - NEW 
First meeting, Sun. April 27, 2008 at 1 p.m.
in the Clubhouse of the Creekside Office Complex
6091 S. Quebec St., Englewood, CO 80111
Contact: Ronald Compton ronnierc1@msn.com
Ph 303-8040-659 and 303-694-1580
      
CONNECTICUT

CONNECTICUT CARCINOID INITIATIVE (CCI)
A support/advocacy group started in 2004 to serve as a support group,
to share experiences and information, to network, and to create health
care provider and public awareness. 
Contact person: Patricia Strong email: PStrongLaw@aol.com
website: http://www.ctcarcinoid.homestead.com

Additional Connecticut support groups, also see New England
and Metro NY Carcinoid Support Group (Under New York).

New England Carcinoid Connection, Inc.  (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England Carcinoid/
Neuroendocrine community.  (The six New England states are:
CT, ME, MA, NH, RI and VT).  New England Carcinoid Connection,
P.O. Box 366282, Boston, MA 02136-0024.
contacts:  Anita O'Brien at nitaobrien@comcast.net
Nancy Hawkins at ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website: http://www.carcinoid-newengland.org/

DISTRICT OF COLUMBIA

Capital Area Carcinoid Survivors (CACS)
A patient-run support group formed in September 2001 for DC,
VA, MD, and eastern USA. Patients, their families and friends meet
monthly on Saturday 10 a.m. to 12 noon. The director on duty for
the month will respond to your email on this or any carcinoid/NET
related subjects and support. For more information about CACS
activities call 703-255-0529 or visit their web site:
http://hometown.aol.com/cacsva/cacswhen.htm

FLORIDA  

Florida Carcinoid Support Group
Contact is Pam Powell of Orange City, FL, phone 386-775-2392 or   
email at: prpowell@cfl.rr.com
Web site: http://www.floridazebras.org/Home_Page.html

GEORGIA

 ILLINOIS

MAINE

New England Carcinoid Connection, Inc.  (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England Carcinoid/Neuroendocrine community. 
(The six New England states are: CT, ME, MA, NH, RI and VT). 
New England Carcinoid Connection, P.O. Box 366282, Boston,
MA 02136-0024, contacts:
Anita O'Brien at nitaobrien@comcast.net
Nancy Hawkins at ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website: http://www.carcinoid-newengland.org/

MARYLAND

Capital Area Carcinoid Survivors (CACS)
A patient-run support group formed in September 2001 for DC, VA, MD,
and eastern USA. Patients, their families and friends meet monthly on
Saturday 10 a.m. to 12 noon. The director on duty for the month will
respond to your email on this or any carcinoid/NET related subjects
and support. For more information about CACS activities call 703-255-0519
or visit their web site: http://hometown.aol.com/cacsva/cacswhen.htm

MASSACHUSETTS

New England Carcinoid Connection, Inc.  (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England Carcinoid/Neuroendocrine community. 
(The six New England states are: CT, ME, MA, NH, RI and VT). 
New England Carcinoid Connection, P.O. Box 366282, Boston,
MA 02136-0024, contacts:
Anita O'Brien at nitaobrien@comcast.net
Nancy Hawkins at ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website: http://www.carcinoid-newengland.org/

New England Carcinoid Connection, Inc.  (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England Carcinoid/Neuroendocrine community.  (The six New England states are: CT, ME, MA, NH, RI and VT).  New England Carcinoid Connection, P.O. Box 366282, Boston, MA 02136-0024, contacts:
Anita O'Brien at nitaobrien@comcast.net
Nancy Hawkins at ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website: http://www.carcinoid-newengland.org/

MICHIGAN

Michigan Carcinoid Support Group
The main theme of this support group is: Sharing Information,
Caring for Each Other.  For minutes of past meetings and
information contact Dave Vickery, 616-450-0842 or 616-447-8550,
email dav2005@earthlink.net  or visit the
web site: http://www.carcinoid.org/support/webpages/MCG.htm

MINNESOTA 

MINNESOTA CARCINOID CANCER PEER SUPPORT GROUP.
This support group was formed in September 1999. The purpose of
this group is to help members manage their lives, cope with emotional
and other issues, and educate themselves. Their goal is to offer a safe
and confidential environment and to do so by providing non-judgmental
support.   For meeting dates and more information please contact:
Jon Morris, 651-698-3901 or jon@jonmorrisphoto.com
Jan Jackson, 651-454-7707 or jaxon7@msn.com
Lorraine Schweitzer, 952-941-1710 or lorsch@mn.rr.com

NEW - Carcinoid Cancer Awareness Network and
            Minnesota Carcinoid Cancer Support - NEW
present  A Minnesota / Midwest Regional Carcinoid Cancer Conference
Our Minnesota Midwest regional carcinoid conference will be held Saturday,
October 4, 2008 from 8:30 a.m. to 4:30 p.m., including lunch. There will also
be a "Meet and Greet" dinner on Friday, October 3, 2008 from 6:30 to 10:00
featuring a silent auction and raffle. Both the dinner and the conference will
be at the Hilton Hotel in Bloomington, 3800 American Boulevard East
(952-854-2100). There is a special room rate of $99 per night for participants who
wish to stay over.
**************
Our special guest speakers on Saturday are: Eugene Woltering, M.D.,
Louisiana State University; Thomas O'Dorisio, M.D., University of Iowa; Timothy
Sielaff, M.D., Virginia Piper Cancer Center, Minneapolis; Nancy Gardner, PhD
ARNP, Rutgers University, New Jersey; and Sidney Levinsohn, R.Ph., author,
lecturer, cancer survivor, and guru. Guest speakers and agenda are subject to
change. Check  www.carcinoidawareness.org  (http://www.carcinoidawareness.org/) for updates.
**************
* The price for the conference $20; the dinner $45.
* Proceeds from the silent auction will be used to further carcinoid awareness and research.
* These events are open to all interested patients, caregivers, family, friends, and medical personnel from anywhere in the U.S.
   and Canada (or any other place you may live).
* Registration will open March 4, 2008. Please register online at
   www.carcinoidawareness.org  (http://www.carcinoidawareness.org/)
* * You may make your payment using paypal or a credit card.
      You may register by phone if you prefer: 516-781-7814. Please register early
      as space is limited to the first 150 people. We will keep a waiting list in
     case more space becomes available.
* Anyone wishing to donate merchandise for the auction or needing more
   information, please contact Minnesota Carcinoid Cancer Support:
Jan - jaxon7@msn.com (651-454-7707) or Kathy - gkpelk@aol.com (763-421-7295)

NEW HAMPSHIRE

New England Carcinoid Connection, Inc.  (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England Carcinoid/Neuroendocrine community. 
(The six New England states are: CT, ME, MA, NH, RI and VT).  New England Carcinoid Connection, P.O. Box 366282, Boston, MA 02136-0024, contacts:
Anita O'Brien at nitaobrien@comcast.net
Nancy Hawkins at ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website: http://www.carcinoid-newengland.org/

NEW YORK / CONNECTICUT / NEW JERSEY (METRO AREA) 

NEW - Carcinoid Cancer Foundation, Inc. (CCF) - NEW

CCF 11th Annual Carcinoid/NET's Conference
For patients, caretakers and medical professionals
"Progress in Research and Treatment" (poster)
April 13, 2008
Mount Sinai Hospital New York, NY
Guest Speakers:
Herbert Chen, M.D., University of Wisconsin Paul P. Carbone
Comprehensive Cancer Center
Madison, Wisconsin
Andrew S. Kennedy, M.D., Wake Radiology Oncology
Cary, NC;
Networking and survivor stories
For more information click on the following links:
Agenda
Flyer and directions
Registration
Register early. Space is limited

Metro NY Carcinoid Support Group (MNYCSG)
This support group in the Metropolitan NY area includes Manhattan , NJ, Long Island, Westchester and part of Connecticut. If you are interested in
participating and to learn more about these support groups contact the coordinator for each chapter or for more information about the Metro
NY Carcinoid Support Group. The Metro NY Carcinoid Support Group
newsletters can also be accessed on the group's web site.
Contact the MNYCSG tri-state coordinator
Jim Weiveris Caring4Noids@aol.com 
Web site: http://www.carcinoid.us/

Connecticut Chapter
For more information contact Phillip Baumann at 203-797-9294
or ualflyboy1@hotmail.com

Long Island Chapter
Carcinoid Cancer Awareness Network, Inc. (CCAN)
For more information about this support groups activities contact:
Maryann Wahman at Carcinoidaware@aol.com

                  NEW   The recorded version of the
                                        Web seminar
          Diagnosis & Treatment of Carcinoid Cancer & NETs
                              on December 15, 2007
Go to the CCAN web site: http://www.carcinoidawareness.org

New Jersey Chapter
For more information contact:
Jim Weiveris  609-812-9294 or Caring4Noids@aol.com
or Judy Golz mjmkgo@aol.com

NORTH CAROLINA

MidAtlantic Carcinoid-NeuroEndocrine Tumor Association (MACNETA) 
The MACNETA group is for patients with Carcinoid Cancer and/or other Neuroendocrine Tumors, family members, friends, physicians, and other medical professionals.  The group is run by volunteers and has ties with Dr. AI Vinik of the Eastern Virginia Medical School Endocrine Center, NET Physician Teams, and Sentara Healthcare System and Physicians.  Support meetings are held the 3rd Sunday in each month at the main Public Health Center located on Southampton Avenue in Norfolk.  It is adjacent to the combined buildings of EVMS, Sentara Norfolk General Hospital, and the Kings Daughters Hospital. For more information please contact:  NEW contact info:
Susie Miller cw-susie1@cox.net; Dina Bolshazy westie01@cox.net;
Susan Burke sburke76@yahoo.com; General Contact    info@macneta.org

OHIO

The Ohio Carcinoid Support Group meets quarterly at 2:00 pm on the third Saturday of the appropriate month at the MCL Cafeteria in Westerville, Ohio (a northern suburb of Columbus, Ohio).  In addition to providing support for carcinoid patients and their carekeepers and giving everyone an opportunity to speak about their concerns, each meeting has a speaker speaking on topics of interest to carcinoid patients.  There are no fees.  We are in the process of forming a procedure for meeting informally where those who are interested in getting together more frequently can meet for lunch or dinner.  There will be no speakers at these get-togethers. Contacts:
Kylli Kusma, Columbus, OH, 614-487-0628 llikki2@wowway.com 
Jayne Beck, Columbus, OH, 614-847-1311 mstoast@msn.com

PENNSYLVANIA

Carcinoid Conference in Harrisburg, PA!

Diagnosis and Treatment of Carcinoid Cancer:  What We Need to Know.

Saturday, April 26, 2008, 9am - 4pm in Harrisburg, PA. 

Featured speakers:  
Dr. Matthew Kulke, Dr. Thomas O'Dorisio
and Judy Lyter, RN, MS, LPC.  
Dr. Harold Harvey, moderator

Details, including the agenda, can be viewed at the PCCAN.net website (see Conference) or using the following link http://www.pccan.net/index_files/Page700.htm
and at the web site of
The Carcinoid Cancer Awareness Network
http://www.carcinoidawareness.org

Please register early-- on-line registration is available.

Teresa Lanza
Pennsylvania Carcinoid Cancer Advocacy Network 
CarcinoidSupport@juno.com
717-576-5095
PCCAN.net

Hershey/Harrisburg
Pennsylvania Carcinoid Cancer Advocacy Network (PCCAN), 
PCCAN provides support and education for carcinoid/ NET patients and their advocates. Most (but not all) meetings are held Sundays, 2 -- 4 pm at the Hershey Medical Center.  Be sure to confirm the time and location at http://www.pccan.net.  Also check our website for information on carcinoid/NET related activities in or near Pennsylvania.
Contact: Teresa Lanza, ph: 717-576-5095 or CarcinoidSupport@juno.com or see web site http://www.pccan.net 
On-line communication and support group:
PCCAN-subscribe@yahoogroups.com.

Lancaster and Pittsburgh area groups are also now in development. 
Check the PCCAN website for more information. http://www.pccan.net

RHODE ISLAND

New England Carcinoid Connection, Inc.  (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England Carcinoid/Neuroendocrine community.  (The six New England states are: CT, ME, MA, NH, RI and VT).  New England Carcinoid Connection, P.O. Box 366282, Boston, MA 02136-0024, contacts:
Anita O'Brien at nitaobrien@comcast.net
Nancy Hawkins at ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website: http://www.carcinoid-newengland.org/

TEXAS

Amarillo
Amarillo Carcinoid Support Group
New informal support group has formed.
First meeting was April 12, 2007 at 7 p.m. in the
Central (downtown) Library, 313 S.E. 4th, Room "A".
Contact:  Lynda Barksdale bronco75@earthlink.net

Austin
THE CENTEX CARCINOID FIGHTERS   
This support group meets on the fourth Saturday of even months, for those in the Austin and Central Texas area. For more information contact:
Jude Filler at:  judefiller@hotmail.com or
Ann Meyer at:  ameyer@swrcc.com  phone: 512-421-4120
at Southwest Regional Cancer Center

Dallas
CARCINOID CANCER TEXAS SUPPORT (CCTS) 
A support group for people living with, affected by or interested in Carcinoid Cancer, it's treatment and effects.  They offer support and education for Carcinoid survivors, family and friends.  Meet on the second Saturday of every month from 11 a.m. to 1 p.m., Baylor Hospital, Dallas. 
For information visit the web site http://www.carcinoid-TX.org or
contact Carol-Anne Wilson, Plano, TX 75075, ph: 972-867-4417 or carolanne52@gmail.com

Houston
Group meets quarterly.  If in the area and interested please contact
Jan Peine, email: carcinoid@comcast.net or phone: 713-977-9922

San Antonio 
Meet on the fourth Saturday of the odd months (Jan., March, etc.) at the Friends Meetinghouse at 7052 Van Diver in San Antonio.
Contact Catherine Jett 210-341-3219 email: datchij@yahoo.com
and Margaret Bloxham 210-824-9225

VERMONT

New England Carcinoid Connection, Inc.  (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England Carcinoid/Neuroendocrine community.  (The six New England states are: CT, ME, MA, NH, RI and VT).  New England Carcinoid Connection, P.O. Box 366282, Boston, MA 02136-0024, contacts:
Anita O'Brien at nitaobrien@comcast.net
Nancy Hawkins at ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website: http://www.carcinoid-newengland.org/

VIRGINIA
 
CAPITAL AREA CARCINOID SURVIVORS  (CACS)
A patient-run support group formed in September 2001 for DC, VA, MD,
and eastern USA. Patients, their families and friends meet monthly on
Saturday 10 a.m. to 12 noon. The director on duty for the month will
respond to your email on this or any carcinoid/NET related subjects
and support. For info call 703-255-0519 or visit their web site: http://hometown.aol.com/cacsva/cacswhen.htm

WASHINGTON

PACIFIC NORTH WEST CARCINOID SUPPORT GROUP (PNW) -
This support group includes members from Vancouver, British Columbia,
Idaho, Oregon, Washington state and neighboring states or Canadian
provinces without a support group. Meeting are usually held twice a year
on a Saturday in Issaquah (east of Seattle). For additional information
please contact:
Corie Dean, 253-838-0401 or email: cadean@natpipe.com

WASHINGTON, D.C.

Capital Area Carcinoid Survivors (CACS)
A patient-run support group formed in September 2001 for DC,
VA, MD, and eastern USA. Patients, their families and friends meet
monthly on Saturday 10 a.m. to 12 noon. The director on duty for
the month will respond to your email on this or any carcinoid/NET
related subjects and support. For more information about CACS
activities call 703-255-0519 or visit their web site:
http://hometown.aol.com/cacsva/cacswhen.htm

NEW - North American Neuroendocrine Tumor Society (NANETS)
is composed of physicians whose main mission is to increase
awareness and knowledge of neuroendocrine tumors and to
promote education through the dissemination and sharing of
information in the medical community . These physicians also
help to increase awareness within the general public of these
often rare conditions by working closely with global support
groups. Click here: http://nanets.net/joomla/

The European Neuroendocrine Tumor Society (ENETS)
is composed of physicians whose main mission is to increase
awareness and knowledge of neuroendocrine tumors and to
promote education through the dissemination and sharing of
information in the medical community . These physicians also
help to increase awareness within the general public of these
often rare conditions by working closely with global support
groups. Click here:
http://www.neuroendocrine.net/rel/index.php4?rubrik_id=1&headline=Home

AUSTRALIA     AUSTRALIA     AUSTRALIA     AUSTRALIA

Check the web site of Brett Watson and Michelle Vincent for
information: http://homepages.ihug.com.au/~watsonb/
and

Check the web site of Eric for information:
http://www.moonhaven.com.au/eric.htm
and

Carcinoid Tumour Forum Australia http://carcinoid.tblog.com

http://www.carcinoidwade.com

CANADA     CANADA      CANADA      CANADA 

The Carcinoid -Neuroendocrine Tumour Society Canada (CNETS CANADA)
This was first organized in October 2002 as The Canadian Carcinoid Cancer and NET Support Team  (CCCNST)    For information please contact:
Maureen Coleman, Toronto, Ontario, 416-544-8467 or email at: maureen@sympatico.ca

Carcinoid NeuroEndocrine Tumour Society
Canada's Toronto Patient Doctor Conference
Thursday 16 October- Sunday 19 October 2008

NEW web site coming soon:  www.cnetscanada.org
     We are the Carcinoid-Neuroendocrine Tumour Society-Canada Everyone in Canada, and nearby border US states, who is a Carcinoid-Neuroendocrine Patient and /or significant other, and/or special friend or family member is welcome to become part of their local Carcinoid-Nets Support Group. We aim to listen, educate, advocate, support, and also enjoy one another’s company.
     There is an on-line group for Canadians and some interested Americans. carcinoidnetscanada@yahoogroups.ca 
 

ATLANTIC PROVINCES 

New Brunswick Carcinoid-Nets Support Group
Please contact Cathy Geddes lfgeddes@nbnet.nb.ca (506-849-8155)

Newfoundland Carcinoid-Nets Support Group
Please contact Jen Bell jeninstjohns@gmail.com (709)-739-9137

Nova Scotia and Prince Edward Island Carcinoid-Nets Support Group
Please contact Colette Morrison physio@ns.sympatico.ca (902) 295-2955

QUEBEC

Montreal Area Carcinoid-Nets Support Group.
Please contact Nycky Thevenet nyckyschon@yahoo.com (514) 425-1734

ONTARIO

Toronto Area Carcinoid-Nets Support Group
Please contact Maureen Coleman maureenc@sympatico.ca, (416)-544-8467
Please contact Noreen Lebowitz lebo74@rogers.com (905)-731-8598

London-Kitchener-Western Ontario Carcinoid-Nets Support Group.
Please contact Frania Banks frania@metromail.ca  (519)-653-3641

Ottawa-Eastern Ontario Carcinoid-Nets Support Group
Please contact Beryl Scrivens bscrivens@idrc.ca
Please contact Morley Dore barbandmorley@rogers.com (613) 725-3229

MANITOBA

Winnipeg Area Carcinoid-Nets Support Group
Please contact Silvia Steinhilber nswplas@mts.net (204)-757-4878

SASKATCHEWAN

Regina-Moose Jaw-Saskatoon Area Carcinoid-Nets Support Group
Please Contact Marlis Duff duff.marlis@prairiesouth.ca  (306)-475-2838
Please contact Lynne Warden lynnemwarden@msn.com (306)-664-3419

ALBERTA

Calgary Area Carcinoid-Nets Support group
Please contact Gayle Howard get-well2@shaw.ca 403-217-0217
Please contact Joan Smart smartj@telus.net (403)-233-2031

BRITISH COLUMBIA

Kamloops Area Carcinoid-Nets Support Group
Please contact Dennis Robertson crackersdog@hotmail.com
Phone TTY is 250-274-7477

Vancouver Area Carcinoid-Nets Support Group
Please contact Barry Jackowich bjackowich@gmail.com (604)-526-6365 (after March 31 2007)
 

 GERMANY     GERMANY      GERMANY      GERMANY

BS NET e.V.
Neuroendocrine Tumor/Carcinoid Support Group (at the moment only in German)

NETHERLANDS

Dutch Carcinoid Support Group
This group is a section of the "Stichting Doorgang" for cancers of the gastrointestinal track.
For additional information please contact:Teun Elemans tn@EURONET.NL or visit the web site http://www.kankerpatient.nl/doorgang/ ( Note: this web site is in Dutch)

NORWAY

CarciNor (the Carcinoid patients association in Norway) aims to act as a support for patients suffering from hormone producing tumors in the stomach, such as carcinoids, endocrine pancreatic tumors, adrenocortical cancer, etc.  The association also works to spread information about these diseases treatments, research methods and other matters of interest.  CarciNor is affiliated to The Norwegian Cancer Society.  To know more about this group you may want to visit their web site http://www.kreftforeningen.no/dt_firstlist.asp?gid=2692, review their Information Brochure or read their member news letter  "CarciNor-Nyhetsbrev"  (Note: Information is presently only available in Norwegian) Email contact for information: carcinor@kreftforeningen.no

POLAND

Carcinoid Patients Organization in Poland 
http://www.rakowiak.pl/

SWEDEN 

CARCINOID PATIENTS ASSOCIATION (CARPA) in Sweden.
This site contains many important carcinoid disease related articles
by Professor Kjell Öberg and research team, in both Swedish and English.   http://www.carcinoid.org/support/docs/CarcinorBrochyr.pdf

Carpa vidarebefodrar frågor till Sektionen för Endokrinologisk Onkologi i Uppsala.  Carpa forwards questions of medical character to the Section of Endocrine Oncology in Uppsala

United Kingdom

NEW in the United Kingdom (May 9, 2006)
NET Patient Foundation incorporating Living With Carcinoid
www.netpatientfoundation.com
You will find a link to this web site of mine at
www.netpatientfoundation.com/?page_id=49

AMEND (Association for Multiple Endocrine Disorders)
Multiple Endocrine Neoplasia (MEN1 and MEN2) support group whose mission is to help and support people with this rare condition. Visit their web sites, click on the blue underlined names above. For more information contact:
Liz Dent at Liz.Dent@amend.org.uk or
Clare Goldsmith at claregoldsmith@hotmail.com

Living With Carcinoid
Notes from 3rd Annual Patient Meeting (click here to the left)
in Birmingham, UK, March 20, 2005
Dr. Martyn Caplin gave an in depth presentation of all aspects of Carcinoid/NET tumors; from diagnosis to treatment options. His presentation was followed by a Q&A session. These notes may be very helpful for newly diagnosed patients who need a comprehensive easily understandable up to date overview of carcinoid and related neuroendocrine tumor issues.

Thinking of Starting A Support Group?

===========

Local support groups with a web site and/or communication via email

NORTHERN CALIFORNIA NEUROENDOCRINE CANCER FIGHTERS (NCNCF)The group also has an e-list. To join it go to: 
            NCNCF-subscribe@yahoogroups.com &  http://health.groups.yahoo.com/group/NCNCF/  

NORTHERN CALIFORNIA CARCINOID NEUROENDOCRINE SUPPORT GROUP
  NorCal CarciNet – (NCCN) An affiliate of Calif. Carcinoid Fighters - (CALCF)
  Web: www.carcinoid-net.org 

SUPPORT~EDUCATION~AWARENESS  (SEA) for those Living with Carcinoid
visit their website:  http://www.SEA4carcinoid.com 

CONNECTICUT CARCINOID INITIATIVE (CCI)
 website: http://www.ctcarcinoid.homestead.com 

New England Carcinoid Connection, Inc.  (NECC)
 Visit the website: http://www.carcinoid-newengland.org/ 

Capital Area Carcinoid Survivors (CACS)
 http://hometown.aol.com/cacsva/cacswhen.htm

 Florida Carcinoid Support Group
  Web site: http://www.floridazebras.org/Home_Page.html  

Metro Atlanta Carcinoid Awareness Group (MACAG)
http://groups.yahoo.com/group/MACAG 

Chicagoland Carcinoid Fighters
 web site at:  http://www.freewebs.com/chicagocarcinoid/ 

Capital Area Carcinoid Survivors (CACS)
http://hometown.aol.com/cacsva/cacswhen.htm 

BOSTON CARCINOID SUPPORT GROUP
http://research.dfci.harvard.edu/neuroendocrine/

 Michigan Carcinoid Support Group
http://www.carcinoid.org/support/webpages/MCG.htm 

Metro NY Carcinoid Support Group (MNYCSG)
Web site: http://www.carcinoid.us/ 

Carcinoid Cancer Awareness Network, Inc. (CCAN)
 http://www.carcinoidawareness.org 

MidAtlantic Carcinoid-NeuroEndocrine Tumor Association (MACNETA) 
MACNETA-subscribe@yahoogroups.com  

Pennsylvania Carcinoid Cancer Advocacy Network (PCCAN), 
PCCAN-subscribe@yahoogroups.com

Delaware Valley Carcinoid Connection
http://www.phillycarcinoid.org/Home_Page.html 

CARCINOID CANCER TEXAS SUPPORT (CCTS) 
http://www.carcinoid-TX.org 

MidAtlantic Carcinoid-NeuroEndocrine Tumor Association (MACNETA) 
info@macneta.org

There is an on-line group for Canadians and some interested Americans.
 carcinoidnetscanada@yahoogroups.ca 

 CarciNor (the Carcinoid patients association in Norway)
http://www.kreftforeningen.no/dt_firstlist.asp?gid=2692 

Carcinoid Patients Organization in Poland

  http://www.rakowiak.pl/

 CARCINOID PATIENTS ASSOCIATION (CARPA) in Sweden.
http://www.carcinoid.org/support/docs/CarcinorBrochyr.pdf

NET Patient Foundation incorporating Living With Carcinoid (in the UK)
 www.netpatientfoundation.com &  www.netpatientfoundation.com/?page_id=49

Carcinoid-Neuroendocrine Tumour Society-Canada (CNETS)
Coming soon www.cnetscanada.org

+ + + + + + + + + + + + + + + +
 

California Carcinoid Fighters -- Board of Directors

Click on image to see a larger picture of the CalCF Board of Directors.
 

November 2001 Stephen Pazan, President Nik Neville, Publicity Morris Bialick, Treasurer Susan Anderson, Board Member Terry Wright, Secretary

May 4, 2002 Stephen Pazan, President      Morris Bialick, Treasurer Nik Neville, Publicity       Terry Wright, Secretary      Dr. Eugene Woltering, (Medical Advisor)        Susan Anderson, (Arizona representative)

Oct. 2003 Susan Anderson, Board Member Pat Gerenday, Secretary Stephen Pazan, President Morris Bialick, Treasurer

Oct. 2003 Dr. Eugene Woltering Medical Advisor

 

The Mission Statement for the newly formed group (Sept. 2004):
To create an alliance, to offer resources, and to facilitate the efforts of
Carcinoid and other Neuroendocrine Tumor (NET) support groups, patients,
and caregivers in North America



From Left to Right:  NAAPNET Steering Committee 2004 - 2005
Susan Anderson ..... Arizona ..... Vice Chair (Resigned June 15, 2005)
Carol-Anne Wilson ..... Texas ..... Chair
Jim Weiveris ..... New Jersey ..... Secretary
Linda Silversmith ..... Maryland ..... Treasurer
Cynthia Marrs ..... Oregon ..... Member (on leave of absence)
 

CALIFORNIA CARCINOID FIGHTERS SEMINAR 2003:
 

For Carcinoid patients, family, friends and medical professionals
 

Saturday October 25, 2003
7:00AM-4:30PM

Doubletree Hotel Santa Ana/Orange County Airport
201 East MacArthur Boulevard, Santa Ana, CA 92707
 

============================================

 

 

Return to top of homepage

[ Home ]

Send mail to SunnySusan@cox.net with questions or comments about this web site.
Copyright © 1997-2008 Susan L. Anderson. All Rights Reserved.
Last modified: 04/14/08