CARCINOID CANCER
A rare form of "slow-growing" neuroendocrine cancer
Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness
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CARCINOID CANCERA rare form of "slow-growing" neuroendocrine cancerSusan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness
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If you are
starting a support group in your area and
would like to be listed, AOL Spam
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Carcinoid's Blog
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The Carcinoid Cancer Foundation (CCF) has existed for close to forty years. In 1997 it produced its first website which made available to the general public and the medical community information about carcinoid and related neuroendocrine cancers. The incidence of these rare cancers is 3 new cases diagnosed per 100,000 people in the United States which equals approximately 8000 new cases per year. The philosophy of CCF has always been to disseminate accurate, up-to-date information about diagnosis, treatment, and surveillance options to maximize survival and quality of life for those individuals suffering with these diseases. We strive as the multitude of carcinoid/NET national and international experts have been doing (some for decades) to find a cure. In the meantime we must focus on educating the medical community to find the best diagnostic and treatment options available. CCF has and is working closely with both US and international medical experts and support groups. Many people may not be aware of all the various activities in which the Carcinoid Cancer Foundation is involved. This first newsletter enumerates CCF's role in patient advocacy, research, and dissemination of medical information and gives a summary of accomplishments in the year 2005 and plans for the year 2006. Without your collaboration our accomplishments could not have been possible.
Metro NY Carcinoid Support Group
(MNYCSG)
This support group in the Metropolitan NY area includes Manhattan , NJ, Long
Island, Westchester and part of Connecticut. If you are interested in
participating and to learn more about these support groups contact the
coordinator for each chapter or for more information about the Metro
NY
Carcinoid Support Group. The Metro NY Carcinoid Support Group
newsletters can
also be accessed on the group's web site.
Contact the MNYCSG tri-state
coordinator
Jim Weiveris
Caring4Noids@aol.com
Web site:
http://www.carcinoid.us/
Long Island Chapter
Carcinoid Cancer Awareness Network, Inc. (CCAN)
For more information about this support groups activities contact:
Maryann Wahman at Carcinoidaware@aol.com
http://www.carcinoidawareness. org It is with great pleasure that CCAN announces the 2009 National Patient
Conference video is now available to view on our web sitewww.carcinoidawaren
ess.org . Click on 09 National Conference video link.Watch for the announcement of The 6th Annual LI Conference video t
o be posted some in the next week or so. .Carcinoid Cancer Awareness Network
CCAN Inc
2480 Hull Ave
N. Bellmore NY 11710
516 781 7814
New Toll Free # 1 866 850 9555
carcinoidaware@aol.com
November is Carcinoid/NET Cancer Awareness Month in New York State. Come celebrate with us!
Don't forget to visit to our website www.carcinoidawareness.org
New Jersey Carcinoid Cancer Network
(NJ-CCN)
The NJ
Carcinoid Cancer Network Newsletter is now available on-line at
http://www.njcarcinoidnetwork.org/html/newsletter.html
For more information contact:
Jim Weiveris 609-812-9294 or
Caring4Noids@aol.com
or Judy Golz mjmkgo@aol.com
NORTH CAROLINA
New group forming
Noids in the Carolinas
Covering both North Carolina & South Carolina
Contact: Debra Austin, ph 864-425-6313
email:
noidsinthecarolinas@yahoo.com
Hampton Road VA Carcinoid/NET Support Group
An informative educational group focused on carcinoid and other
neuroendocrine tumors and cancers, consists of individuals and organizations
from the patient, advocacy, and medical communities throughout Hampton Roads,
which is also known as Tidewater. Friends and family of patients with these
tumors and cancers seeking support are encouraged to join.
Please contact:
HRVaCarcinoidGrp@yahoo.com for more information
OHIO
The Ohio Carcinoid Support Group meets monthly on the third Saturday of teach
month in Westerville, Ohio (a northern suburb
of Columbus, Ohio). In addition to providing support for carcinoid
patients and their carekeepers and giving everyone an opportunity to speak about
their concerns, each meeting has a speaker speaking on topics of interest to
carcinoid patients.
Contacts:
Jayne Beck, Columbus, OH, 614-847-1311
mstoast@msn.com
PENNSYLVANIA
Hershey/Harrisburg
Pennsylvania Carcinoid Cancer Advocacy Network (PCCAN),
PCCAN provides support and education for carcinoid/ NET patients and their
advocates. Most (but not all) meetings are held Sundays,
2 -- 4 pm at the Hershey Medical Center. Be sure to confirm the time
and location at
http://www.pccan.net. Also
check our website for information on carcinoid/NET related activities in or near
Pennsylvania.
Contact: Teresa Lanza, ph: 717-576-5095 or
CarcinoidSupport@juno.com or see web site
http://www.pccan.net
On-line communication and support group:
PCCAN-subscribe@yahoogroups.com.
Read about Tereza Lanza's commitment to educate the carcinoid community
Her Blog address is
http://www.blogger.com/profile/07975567130568769758
Lancaster and Pittsburgh area groups are also
now in development.
Check the PCCAN website for more information.
http://www.pccan.net
Lancaster Carcinoid/NETS Support Group
For more information contact: Susan Nolt
susan288@verizon.net
Delaware Valley Carcinoid
Connection
A
New Group Supporting Carcinoid and Neuroendocrine
Tumor Patients and Their
Advocates
First meeting
was held Jan. 20, 2008.
For meeting schedule and location visit their website
http://www.phillycarcinoid.org/
Contact Suzi F. Garber (Founder, patient and advocate) at
info@phillycarcinoid.org
RHODE ISLAND
New England Carcinoid Connection, Inc. (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England
Carcinoid/Neuroendocrine community. (The six New England states are: CT, ME,
MA, NH, RI and VT). New England Carcinoid
Connection, P.O. Box 366282, Boston, MA 02136-0024, contacts:
Anita O'Brien at
nitaobrien@comcast.net
Nancy Hawkins at
ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website:
http://www.carcinoid-newengland.org/
SOUTH CAROLINA
New group forming
Noids in the Carolinas - NEW
Covering both North Carolina & South Carolina
Contact: Debra Austin, ph 864-425-6313
email:
noidsinthecarolinas@yahoo.com
TEXAS
Amarillo
Amarillo Area Carcinoid Support Group
New informal support group has formed.
First meeting was April 12, 2007
Contact: Lynda Barksdale
bronco75@earthlink.net
Austin
THE CENTEX
CARCINOID FIGHTERS
This support group meets on the fourth Saturday of even months, for those in the Austin and
Central Texas area. For more information contact:
Jude Filler at: judefiller@hotmail.com or
Ann Meyer at: ameyer@swrcc.com
phone: 512-421-4120
at Southwest Regional Cancer Center
Dallas
CARCINOID CANCER TEXAS SUPPORT (CCTS)
A support group for people living with, affected by or interested in Carcinoid
Cancer, it's treatment and effects. They offer support and education for
Carcinoid survivors, family and friends. Meet on the
second Saturday of
every month from 11 a.m. to 1 p.m., Baylor Hospital, Dallas. For information visit the web site
http://www.carcinoid-TX.org
or
contact Carol-Anne Wilson, Plano, TX or
carolanne52@gmail.com
Houston
Group meets quarterly.
If in the area and interested please contact
Jan Peine, email:
carcinoid@comcast.net
San Antonio
Meet on the fourth Saturday of the odd months (Jan., March, etc.) at the Friends
Meetinghouse at 7052 Van Diver in San Antonio.
Contact Catherine Jett datchij@yahoo.com
West Texas
Midland, Odessa, Lubbock, Abilene, and San Angelo
Contact: Sarah Rees
sarahjanerees@yahoo.com
VERMONT
New England Carcinoid Connection, Inc. (NECC)
NECC is a non-profit organization with the sole purpose
of providing awareness, education and support to the New England
Carcinoid/Neuroendocrine community. (The six New England states are:
CT, ME,
MA, NH, RI and VT). New England Carcinoid
Connection, P.O. Box 366282, Boston, MA 02136-0024, contacts:
Anita O'Brien at
nitaobrien@comcast.net
Nancy Hawkins at
ndhawk@suscom-maine.net
Jane Lombardi at janelombardi@aol.com
Visit the website:
http://www.carcinoid-newengland.org/
VIRGINIA
CAPITAL AREA CARCINOID SURVIVORS
(CACS)
A patient-run support group formed in
September 2001 for DC, VA,
MD,
and eastern USA. Patients, their families and
friends
meet monthly on
Saturday 10 a.m. to 12 noon. The director on duty for the month will
respond to your email on this or any carcinoid/NET related subjects
and support. For info call 703-255-0519 or visit their web site:
NEW -
http://members.cox.net/cacsva/index.htm
Hampton Road VA Carcinoid/NET Support Group
WASHINGTON
PACIFIC NORTH WEST CARCINOID SUPPORT GROUP
(PNW) -
This support group includes members from Vancouver, British Columbia,
Idaho,
Oregon,
Washington state and neighboring states or Canadian
provinces without a
support group.
Meeting are usually held twice a year
on a Saturday in Issaquah (east of
Seattle).
For additional information
please contact:
Corie Dean
cadean@natpipe.com
WASHINGTON, D.C.
Capital Area Carcinoid Survivors
(CACS)
A patient-run support group formed in September 2001 for
DC,
VA, MD, and eastern USA. Patients, their families and friends
meet
monthly on Saturday 10 a.m. to 12 noon. The director on duty for
the month will respond to your email on this or any carcinoid/NET
related subjects and support. For more information about CACS
activities call 703-255-0519 or visit their web site:
NEW -
http://members.cox.net/cacsva/index.htm
North American Neuroendocrine Tumor
Society (NANETS)
is
composed of physicians
whose main mission is to increase
awareness and knowledge of neuroendocrine
tumors and to
promote education through the dissemination and sharing of
information in the medical community . These physicians also
help to
increase awareness within the general public of these
often rare conditions
by working closely with global support
groups. Click here:
http://nanets.net/joomla/
The European Neuroendocrine Tumor Society
(ENETS)
is
composed of physicians
whose main mission is to increase
awareness and knowledge of neuroendocrine
tumors and to
promote education through the dissemination and sharing of
information in the medical community . These physicians also
help to
increase awareness within the general public of these
often rare conditions
by working closely with global support
groups. Click here:
http://www.neuroendocrine.net/rel/index.php4?rubrik_id=1&headline=Home
AUSTRALIA
AUSTRALIA
AUSTRALIA
AUSTRALIA
NEW - News from Australia - NEW
Become a Friend of the Unicorn Foundation (http//www.unicornfoundation.org.au)
Launched February 2010 - Our New Website -http//www.unicornfoundation.org.au
See our new patient support groups in both NSW & ACT (http//www.unicornfoundation.org.au)
Sydney Neuroendocrine Tumour (NET) Educational/Support Group Meeting
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Wednesday, April 14, 2010
Time:
5:00pm - 7:00pm
Location:
North Shore Private Hospital (Ground Floor Conference Room)
Street:
Westbourne Street, St Leonards (Sydney)
Neuroendocrine tumour (NET) and carcinoid
patients, carers and interested clinicians are
invited to come and learn about the latest happenings in the
management of NETs
and to share their experiences at our new Sydney
education/support group. All welcome!
Topic - Recent Research in NETs
Speaker - Dr Anthony Chambers, Endocrine Surgeon
Dr Chambers has recently returned from Canada after completing a
surgical fellowship in
Calgary with some of the top doctors in NET management. He is
now working back in Sydney
at St Vincent's Hospital, Darlinghurst and will be presenting to
us on recent and new research in NETs.
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Check the web site of Brett Watson and Michelle
Vincent for
information:
http://homepages.ihug.com.au/~watsonb/
and
Check the web site of Eric for information:
http://www.moonhaven.com.au/eric.htm
and
Carcinoid Tumour
Forum Australia http://carcinoid.tblog.com
:
Wednesday, April 14, 2010
Time:
5:00pm - 7:00pm
Location:
North Shore Private Hospital (Ground Floor Conference Room)
Street:
Westbourne Street, St Leonards (Sydney)
Sydney Neuroendocrine
Tumour (NET) Educational/Support Group Meeting
Neuroendocrine tumour (NET) and carcinoid patients, carers and
interested clinicians are
invited to come and learn about the latest happenings in the
management of NETs
and to share their experiences at our new Sydney
education/support group. All welcome!
Topic - Recent Research in NETs
Speaker - Dr Anthony Chambers, Endocrine Surgeon
Dr Chambers has recently returned from Canada after completing a
surgical fellowship in
Calgary with some of the top doctors in NET management. He is
now working back in Sydney
at St Vincent's Hospital, Darlinghurst and will be presenting to
us on recent and new research in NETs.
CANADA CANADA CANADA CANADA
The Carcinoid -Neuroendocrine Tumour Society Canada (CNETS CANADA)
This was first organized in October 2002
as The Canadian Carcinoid Cancer and NET
Support Team (CCCNST)
CNETS-Canada
To all Carcinoid fighters, their support persons who live in Canada, and in
areas near the border, including Upper New York State, as well as any passing
through; this support group gives an opportunity for fellowship, round table
discussions, and information sessions regarding Carcinoid.
For information about our next support group meeting please email:
Maureen Coleman at
maureenc@sympatico.ca
To join Canadian discussion group
Carcinoid-NETS-Canada
A Listser/Website dedicated for Canadians and their Neuroendocrine System
illnesses
To Join CLICK
HERE .
For information please contact:
Maureen Coleman, Toronto, Ontario, 416-544-8467
or email at: maureen@sympatico.ca
web site:
www.cnetscanada.org
We are the Carcinoid-Neuroendocrine Tumour
Society-Canada Everyone in Canada, and nearby border US states, who is a
Carcinoid-Neuroendocrine Patient and /or significant other, and/or special
friend or family member is welcome to become part of their local Carcinoid-Nets
Support Group. We aim to listen, educate, advocate, support, and also enjoy one
another’s company.
There is an on-line group for Canadians and some interested Americans.
carcinoidnetscanada@yahoogroups.ca
May 13-16, 2010, Vancouver International CNETS Canada Conference for patients and med professionals. NEW
The Vancouver Conference tentative program is now on the CNETS Canada website
This program will be instrumental in
moving the needs of the International Carcinoid NET patient community forward.
And we would love to see you in Vancouver. It is a really great place as the
Winter Olympics will demonstrate.
We feel that our program is 90% complete. We will add more information as we get it.
So please register for the Vancouver
International Conference online at
www.cnetscanada.org.
We can also help you register offline if you like.
Please just email
info@cnetscanada.org with questions or if you need help.
Dates are May 13-16, 2010.
Please go to
www.cnetscanada.org and register for the conference.
We only have room for a total of 370 people including faculty so you
may want to register before all the spaces are gone.
A number of people actually booked before this programme came out
and we thank you for your trust in our ability to generate an effective
conference.
Maureen Coleman, President, CNETS Canada
ATLANTIC PROVINCES
New Brunswick Carcinoid-Nets Support Group
Please contactNewfoundland Carcinoid-Nets Support Group
Please contactNova Scotia and Prince Edward Island Carcinoid-Nets Support Group
Please contact Colette Morrison physio@ns.sympatico.ca (902) 295-2955
QUEBEC
Montreal Area Carcinoid-Nets Support Group.
Please contact Nycky Thevenet nyckyschon@yahoo.com (514) 425-1734
ONTARIO
Toronto Area Carcinoid-Nets Support Group
Please contact Maureen Coleman maureenc@sympatico.ca, (416)-544-8467
Please contact Noreen Lebowitz lebo74@rogers.com (905)-731-8598London-Kitchener-Western Ontario Carcinoid-Nets Support Group.
Please contactOttawa-Eastern Ontario Carcinoid-Nets Support Group
Please contact Morley Dore barbandmorley@rogers.com (613) 725-3229
MANITOBA
Winnipeg Area Carcinoid-Nets Support Group
Please contact Silvia Steinhilber nswplas@mts.net (204)-757-4878
SASKATCHEWAN
Regina-Moose Jaw-Saskatoon Area Carcinoid-Nets Support Group
Please Contact Marlis Duff duff.marlis@prairiesouth.ca (306)-475-2838
Please contact Lynne Warden lynnemwarden@msn.com (306)-664-3419
ALBERTA
Calgary Area Carcinoid-Nets Support group
Please contact Joan Smart smartj@telus.net (403)-233-2031
BRITISH COLUMBIA
Kamloops Area Carcinoid-Nets Support Group
Please contact Dennis Robertson crackersdog@hotmail.com
Phone TTY is 250-274-7477Vancouver Area Carcinoid-Nets Support Group
Please contact
GERMANY GERMANY GERMANY GERMANY
BS NET e.V.
Neuroendocrine Tumor/Carcinoid Support Group (at the moment only in German)
NETHERLANDS
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Dutch Carcinoid Support Group
This group is a section of the "Stichting Doorgang" for cancers of the
gastrointestinal track.
For additional information please contact:Teun Elemans
tn@EURONET.NL or visit the web site
CarciNor (the Carcinoid patients association in Norway) aims to act as a support for patients suffering from hormone producing tumors in the stomach, such as carcinoids, endocrine pancreatic tumors, adrenocortical cancer, etc. The association also works to spread information about these diseases treatments, research methods and other matters of interest. CarciNor is affiliated to The Norwegian Cancer Society. To know more about this group you may want to visit their web site http://www.kreftforeningen.no/dt_firstlist.asp?gid=2692, review their Information Brochure or read their member news letter "CarciNor-Nyhetsbrev" (Note: Information is presently only available in Norwegian) Email contact for information: carcinor@kreftforeningen.no
POLAND
Carcinoid Patients Organization in
Poland
http://www.rakowiak.pl/
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SWEDEN
CARCINOID PATIENTS ASSOCIATION (CARPA)
in Sweden.
This site contains many important carcinoid disease related articles
by
Professor Kjell Öberg and research team, in both Swedish and English.
http://www.carcinoid.org/support/docs/CarcinorBrochyr.pdf
Carpa vidarebefodrar frĺgor till Sektionen för Endokrinologisk Onkologi i Uppsala. Carpa forwards questions of medical character to the Section of Endocrine Oncology in Uppsala
NEW in the United Kingdom (May
9, 2006)
NET Patient Foundation incorporating Living With Carcinoid
www.netpatientfoundation.com
You will find a link to this web site at
www.netpatientfoundation.com/?page_id=49
AMEND (Association for Multiple Endocrine
Disorders)
Multiple Endocrine Neoplasia
(MEN1 and MEN2) support group whose mission is to help
and support people with this rare condition. Visit their web sites, click on the
blue underlined names above. For more information contact:
Liz Dent at Liz.Dent@amend.org.uk
or
Clare Goldsmith at
claregoldsmith@hotmail.com
Living With Carcinoid
Notes
from 3rd Annual Patient Meeting (click here to the left)
in Birmingham, UK, March 20, 2005
Dr. Martyn Caplin gave an in depth presentation of all aspects of
Carcinoid/NET tumors; from diagnosis to treatment options. His presentation was
followed by a Q&A session. These notes may be very helpful for newly diagnosed
patients who need a comprehensive easily understandable up to date overview of
carcinoid and related neuroendocrine tumor issues.
Thinking of Starting A Support Group?
No support group in your area? Consider starting one. CLICK HERE===========
Local support groups with a web site and/or communication via email
NORTHERN CALIFORNIA
NEUROENDOCRINE CANCER FIGHTERS (NCNCF)The
group also has an e-list. To join it go to:
NCNCF-subscribe@yahoogroups.com & http://health.groups.yahoo.com/group/NCNCF/
NORTHERN CALIFORNIA
CARCINOID NEUROENDOCRINE SUPPORT GROUP
NorCal CarciNet – (NCCN)
An affiliate of Calif. Carcinoid Fighters - (CALCF)
Web:
www.carcinoid-net.org
SUPPORT~EDUCATION~AWARENESS
(SEA)
for those Living with Carcinoid
visit their website:
http://www.SEA4carcinoid.com
CONNECTICUT CARCINOID INITIATIVE (CCI)
website:
http://www.ctcarcinoid.homestead.com
New
England Carcinoid Connection, Inc. (NECC)
Visit the website:
http://www.carcinoid-newengland.org/
Capital Area Carcinoid Survivors (CACS)
NEW -
http://members.cox.net/cacsva/index.htm
Florida
Carcinoid Support Group
Web site:
http://www.floridaz
Metro Atlanta Carcinoid Awareness Group (MACAG)
http://groups.yahoo.com/group/MACAG
Chicagoland Carcinoid Fighters
web site at:
http://www.freewebs.com/chicagocarcinoid/
BOSTON
CARCINOID SUPPORT GROUP
http://research.dfci.harvard.edu/neuroendocrine/
Michigan
Carcinoid Support Group
http://www.carcinoid.org/support/webpages/MCG.htm
Metro NY Carcinoid Support Group
(MNYCSG)
Web site:
http://www.carcinoid.us/
Carcinoid Cancer
Awareness Network, Inc. (CCAN)
http://www.carcinoidawareness.org
MidAtlantic Carcinoid-NeuroEndocrine Tumor Association (MACNETA)
MACNETA-subscribe@yahoogroups.com
Pennsylvania
Carcinoid Cancer Advocacy Network (PCCAN),
PCCAN-subscribe@yahoogroups.com
Delaware
Valley Carcinoid Connection
http://www.phillycarcinoid.org/Home_Page.html
CARCINOID CANCER TEXAS SUPPORT (CCTS)
http://www.carcinoid-TX.org
MidAtlantic
Carcinoid-NeuroEndocrine Tumor Association (MACNETA)
info@macneta.org
There
is an on-line group for Canadians and some interested Americans.
carcinoidnetscanada@yahoogroups.ca
CarciNor (the Carcinoid patients association in Norway)
http://www.kreftforeningen.no/dt_firstlist.asp?gid=2692
Carcinoid Patients Organization in Poland
http://www.rakowiak.pl/
CARCINOID
PATIENTS ASSOCIATION (CARPA)
in Sweden.
http://www.carcinoid.org/support/docs/CarcinorBrochyr.pdf
NET Patient Foundation
incorporating Living With Carcinoid (in the UK)
www.netpatientfoundation.com
& www.netpatientfoundation.com/?page_id=49
Carcinoid-Neuroendocrine Tumour Society-Canada (CNETS)
www.cnetscanada.org
+ + + + + + + + + + + + + + + +
November 2001 Stephen Pazan, President Nik Neville, Publicity Morris Bialick, Treasurer Susan Anderson, Board Member Terry Wright, Secretary |
May 4, 2002 Stephen Pazan, President Morris Bialick, Treasurer Nik Neville, Publicity Terry Wright, Secretary Dr. Eugene Woltering, (Medical Advisor) Susan Anderson, (Arizona representative) |
Oct. 2003 Susan Anderson, Board Member Pat Gerenday, Secretary Stephen Pazan, President Morris Bialick, Treasurer |
Oct. 2003
Dr. Eugene Woltering Medical Advisor |
The Mission Statement for the newly
formed group (Sept. 2004):
To create an alliance, to offer
resources, and to facilitate the efforts of
Carcinoid
and other Neuroendocrine Tumor (NET)
support groups, patients,
and caregivers in North America
From Left to Right: NAAPNET Steering
Committee 2004 - 2005
Susan Anderson ..... Arizona ..... Vice Chair (Resigned June 15, 2005)
Carol-Anne Wilson ..... Texas ..... Chair
Jim Weiveris ..... New Jersey ..... Secretary
Linda Silversmith ..... Maryland ..... Treasurer
Cynthia Marrs ..... Oregon ..... Member (on leave of absence)
CALIFORNIA CARCINOID FIGHTERS SEMINAR 2003:
For Carcinoid patients, family, friends and medical
professionals
Saturday October 25, 2003
7:00AM-4:30PM
Doubletree Hotel Santa Ana/Orange County Airport
201 East MacArthur Boulevard, Santa Ana, CA 92707
Mention the "Carcinoid Seminar" for the special room rate and to
request "special needs".
Coordinated by California Carcinoid Fighters (CalCF)
Underwritten through a generous grant from Novartis Oncology
For more information visit the CalCF website
http://www.sccfighters.org
or contactt Tom May of The Wellness Community-South Bay Cities
1-310-376-3550 extension 22
Please read last section on this page - below. Thank you, Susan, 1-26-2009
Since
1996 --- when I first located others with
Carcinoid --- I have answered every email sent to me, although some replies were
delayed longer than I liked. I am NO longer able to reply to all e-mails due to
the volume and other things going on in my life (all good). I do love hearing
from others, but an unable to reply to all individually. I shall not forget my
many Carcinoid friends and of course shall reply to you … as time permits. This
web site was 11 years old on April 27, 2008, and my plan is to keep it updated
for many years to come.
Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time. Yes, there is wireless internet and we have tried that a number of places. But, if I deal with email when we are away from home then it is not a "restful vacation" for me.
PLEASE use the SEARCH capability at the top my pages. You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.
To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4 p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The information and support line” is staffed by medical professionals. Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org
CCF - Serving
the carcinoid/NETs patient and medical community for close to forty
years (chartered in 1968)
“Meets Extensive Standards of America’s
Most Experienced Charity Evaluator”
Better Business Bureau
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*
DISCLAIMER:
I am a patient and
NOT a medical doctor or health care professional. I share information and
links to information that has been helpful to me and that I believe to be
correct and good, but I cannot guarantee the accuracy of this information,
except for MY stories. I urge you not to rely only on this information
but I believe you should discuss your situation and information with your
medical doctors and/or other medical professionals.
"Sunny" Susan Anderson
* * * * * * * * * *
Copyright © 1997-2010 Susan L. Anderson. All Rights Reserved.
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Send mail to
SunnySusan@cox.net with
questions or comments about this web site.
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