Carcinoid A rare form of "slow-growing" neuroendocrine cancer
Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness
Updated: 18 May 2015
The Carcinoid Cancer Awareness Network (CCAN) has changed its name to The Neuroendocrine Cancer Awareness Network (NCAN). Just the name has changed, our service and commitment has not. Watch for our new updated website to debut early 2015. And thanks for your support!
Mark Your Calendars
The 2015 NCAN
Patient Conference series is a go- bringing you the most updated
-March 28, 2015 in Uniondale, NY
-April 18, 2015 in Phoenix, AZ
-May 16, 2015 in Columbus, OH
-June 20, 2015 in Minneapolis, MN
Of course, the walk and gala are on the agenda. See you there!
-7th Annual Strides for Stripes will be held on Saturday Oct 24, 2015
-12th Annual 'Celebration of Life Gala' will be held Saturday November 14,2015
Neuroendocrine Tumors (NETs) is the umbrella term for a group of
unusual, often slow-growing cancers,
Doctor Eugene A. Woltering, the Carcinoid Cancer Awareness Network
(CCAN) and the entire New Orleans Neuroendocrine Tumor Specialists (NOLANETS)
team at Ochsner in
On Thursday evening September 20th 2012 we will have our traditional social event featuring Dr Woltering leading everyone in a “second line.” This social event will start at 6:30 PM CST and will go until about 10:00 PM
On Friday and Saturday September 21st and 22nd 2012 we will have breakfast from 7:30 AM until 8:00AM and then lectures from 8:00AM until 5:00 PM each day with enough break time so that everyone is not worn out. I am not sure that we will have tow simultaneous sessions in the morning like last time….people had lots of mixed feelings on separating the group into different sessions.
Like always---- we learn from doing these conferences. We welcome your suggestions about what you liked and disliked at the last conference. Please feel free to send me speaker/conference suggestions at firstname.lastname@example.org.
The cost of the conference registration fees have not been worked out, but everyone who has attended our other NOLA conferences have remarked on the inexpensive nature of the registration fees when compared to the number of speakers, free meals and morning/afternoon snacks.
We are hoping that “all ya all” come on down and party with Doc W. and the
rest of the
Eugene A. Woltering MD FACS,
The James D.
Rives Professor of Surgery and Neurosciences
LSUHSC Department of Surgery, New Orleans LA 70112
504-884-3555-cell Clinic address:
200 West Esplanade Ave, Suite 200, Kenner La 70065
504-464-8500- clinic appointments
Healthcare Network assumes no responsibility for your reliance on
information provided by its physicians in this public area chat room,
support group or bulletin board. Receipt of information or communication in
this public area is not a substitute for medical exams, services or
treatment you should always seek from a medical professional. You are
solely responsible for any associated consequences, claims or disputes and
you expressly consent to jurisdiction in the courts of Louisiana where any
may arise. Call your doctor or 911
immediately for medical emergencies.
I have been working on a
book since January 2011;
it is 1/3 memoir, 1/3 genealogy, AND 1/3 Carcinoid - NETs,
plus some cultural history worked in through out the book.
My editors shall copy edit and assist in layout, cover design and
all sorts of things involved with getting a book published.
7-1-12 The Book is coming along just great!
It was published, in July 2013!
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Registration now opened for our 2011 events
For details and to register got to www.carcinoidawareness.org
7th Annual Long Island NET Patient Conference
Saturday, August 20, 2011
Indy Carcinoid Awareness Network
Benefit for CCAN
Sept 16, 2011
CCAN ‘s 2011 NET Cancer Patient Conference Series
Saturday September 17, 2011
Saturday October 15, 2011
The CCAN’s 3rd Annual Strides for Stripes Zebra Walk
Eisenhower Park, East Meadow, NY
Saturday, November 12, 2011 6 p.m. - 11 p.m.
The CCAN’s 8th Annual “Celebration of Life” Gala
545 Hicksville Rd. Bethpage, NY 11714
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New BOOK for the medical community:
Neuroendocrine Tumors: A Comprehensive Guide To
Diagnosis and Management
published by Inter Science Institute.
Eugene A. Woltering, MD, FACS; Aaron I. Vinik, MD, PhD, FCP, MACP; Vay Liang W. (Bill) Go, MD; Thomas M. O’Dorisio, MD.
Those attending the Carcinoid Conference in
Sept. 28 - 30, 2006
received a copy of this book on CD in their registration packets.
A note from "Sunny" Susan Anderson regarding conferences.
From my experiences I can say, when attending a conference, you shall have a very educational and enjoyable time. First we get to meet and hear some very special doctors speak, so we learn new things; then we are able to put faces with the people we only know on-line by their names; we net-work with old friends, make new friends and know that we are not alone in battling our neuroendocrine cancer.
September 22, 23, 24, 2005, Carcinoid Conference,
September 28, 29, 30, 2006, National Carcinoid / NET Conference, Portland, OR
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Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good). I do love hearing from others, but an unable to reply to all individually. I shall not forget my many Carcinoid friends and of course shall reply to you … as time permits. This web site was 17 years old on April 27, 2014, and my plan is to keep it updated for many years to come.
Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time. Yes, there is wireless internet and we have tried that a number of places. But, if I deal with email when we are away from home then it is not a "restful vacation" for me.
PLEASE use the SEARCH capability at the top my pages. You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.
To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4 p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The information and support line” is staffed by medical professionals. Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org
CCF - Serving
the carcinoid/NETs patient and medical community for
more than forty years (chartered in 1968)
“Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau
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DISCLAIMER: I am a patient and NOT a medical doctor or health care professional. I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories. I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals. "Sunny" Susan Anderson superb web site is at http://www.carcinoid.org
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