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A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

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Upcoming Conference

                                                     Updated:  28 April, 2014


Major  Upgrade to Web Page coming summer of 2014!


2014 National NET Cancer Patient Conference — Registration Now Open

by The Carcinoid Cancer Foundation (CCF)

Carcinoid and NET (neuroendocrine tumor) cancer patients, caregivers and family members, as well as physicians and other health professionals, have a unique opportunity to learn more about NET cancer, including the latest information about diagnosis and treatments, and to network with hundreds of others who share similar concerns and experiences when the 2014 National NET Cancer Patient Conference is held in Charlotte, North Carolina from Thursday, September 18 to Saturday, September 20, 2014. There will also be a special conference on lung carcinoid and DIPNECH on Sunday morning, September 21. Whether newly diagnosed or living with a NET for many years, this conference will feature up-to-the-minute information as well advice from specialists on the leading issues faced by NET patients.

Charlotte NC collage_2

Nationally and internationally recognized NET cancer experts will speak on a wide variety of topics including:

• NETs – An Introduction to the Basics
• Midgut NETs Surgery
• Pancreatic NETs Surgery
• Clinical Trials
• New Approaches to Treating NETs Induced Diarrhea
• Somatostatin Analogs: Summary of Recent Trials
• Update on NETs Markers
• Benefit of Multidisciplinary Teams Treating NETs
• Role of the Gastroenterologist in Diagnosing and Treating NETs
• Update on Studies in MEN 1 and the Risk of Familial NETs
• Therapy with LU-177 vs. High Dose LAR: The AAA Trial
• Update on Multivisceral Organ Transplants
• Vitamin Supplements and Alternative Therapies
• Spheres vs. Chemoembolization vs. Bland Embolization

National NET Cancer Patient Conference 2014 Guest Speakers

The Sunday conference on lung carcinoid and DIPNECH will focus on:

• Finding lung NETs and Their Metastasis
• Bronchoscopy, Percutaneous & Trans-bronchial Biopsies for Lung Lesions
• Surgical Approaches to DIPNECH, Primary NETs and Their Metastasis
• Role of Chemotherapy, Biologic Response Modifiers and PRRT in the Therapy of Lung  NETs

Opening the conference on Thursday afternoon will be a session on insurance – appeals, interpretation of bills, out of network benefits, and ICD. The Emotional Implication of NETs Treatment will also be discussed.

During Friday and Saturday, in addition to the presentations, there will be two question and answer sessions each day. On Sunday, a question and answer session will conclude the special conference on lung carcinoid and DIPNECH. Lectures begin at 8:00 am on Friday, Saturday, and Sunday. For the complete program, CLICK HERE.

The registration fee is $100.00 per person through April 30, 2014; $125.00 per person from May 1 through August 31, 2014; and $150.00 per person for late registration from September 1, 2014 and on. The registration fee includes attendance at the conference, a reception on Thursday evening, and both breakfast and lunch on Friday and Saturday. To register, CLICK HERE.

A special group rate for the Charlotte Marriott City Center is $149.00 per room per night, subject to availability. Reservations for the hotel should be made directly by attendees with Marriott reservations at 800-228-9290 or at the hotel in Charlotte, 704-333-9000. Amenities at the hotel include a heated indoor swimming pool, whirlpool, and 24-hour fitness center. For more information about the hotel, CLICK HERE.

Charlotte Marriott City Center Hotel collage

While in Charlotte, there’s lots to explore – museums, restaurants, Carowinds amusement park, the NASCAR Hall of Fame, gardens, a private safari at Lazy 5 Ranch where you just might see a zebra!, carriage tours, historic sites, and more. CLICK HERE for 100 Fun Things to Do in Charlotte, CLICK HERE for Trip Advisor reviews, and check out more about Charlotte HERE.

Carcinoid Cancer Awareness Network logoFor more information, contact Maryann Wahmann, Carcinoid Cancer Awareness Network at 866-850-9555 or by email at 2014netconf@optonline.net.

The Carcinoid Cancer Foundation (CCF) | January 30, 2014 at 5:20 pm | Tags: carcinoid blogs, Carcinoid Cancer Awareness Network, carcinoid conferences, Carowinds amusement park, CCAN, Charlotte Marriott City Center, Dr. Alexandra Phan, Dr. Charles Nutting, Dr. Edward Wolin, Dr. Emily Bergsland, Dr. Eric Liu, Dr. Eugene Woltering, Dr. Michael Choti, Dr. Richard Campeau, Dr. Richard Warner, Dr. Steven Libutti, Dr. Thomas O'Dorisio, Dr. Yi-Zarn Wang, Lazy 5 Ranch, NASCAR Hall of Fame, national NET cancer patient conference, National NET Patient Conference, NET cancer, NET cancer patient conferences, North Carolina, rare cancers, rare diseases, things to do in Charlotte | Categories: carcinoid, carcinoid and neuroendocrine tumor treatments, carcinoid awareness, neuroendocrine cancer, neuroendocrine tumor cancer awareness, neuroendocrine tumors | URL: http://wp.me/pFxSe-1na

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 Registration is now open for the Carcinoid Cancer Awareness Network’s (CCAN) NET Cancer Patient Conference in Los Angeles, California, on Saturday, December 14, 2013. The featured speakers will be Dr. Edward Wolin, Dr. Eric Liu, Dr. Eugene Woltering, Dr. Yi-Zarn Wang, Dr. Charles Nutting, and Mia Tepper. The conference will be held at the Hyatt Regency Century Plaza and a special rate is available until November 18th for conference guests. For more information and to register, click here:


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2014 National NET Patient Conference

09/18/2014 - 09/20/2014

Save the date -- 2014 National NET Patient Conference (yes, that’s 2014!), September 18-20 at the Charlotte Marriott City Center Hotel, 100 West Trade Street, Charlotte, North Carolina. Registration will open in February 2014. More information to follow at a later date from the Carcinoid Cancer Awareness Network, the conference sponsor.

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Many of these are NEW links although same topic!

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Maryann Furlong Wahmann posted in Carcinoid Cancer Awareness Network

CCAN is Co sponsor with The University of...

Maryann Furlong Wahmann

6:25pm Feb 4

CCAN is Co sponsor with The University of Kentucky College of Medicine meeting on Saturday April 20, 2013
An Integrative Approach to the Management of NETs. for information go to
the link below or www.carcinoidwareness.org to regsiter.

An Integrative Approach to the Management of NETs


To make reservations call 1-859-231-9000, or 1-877-539-1648 ask for th...

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Zebra Del Lis
2012 NET Cancer Patient Conference
Astor Crowne Plaza - French Quarters
739 Canal Street at Bourbon
New Orleans, LA 70130

Driving Directions

Thursday September 20, 2012 at 3:00 PM CDT
Saturday September 22, 2012 at 5:00 PM CDT
Add to my calendar

Are you looking for the most up-to-date information on NET cancer? Would you benefit from meeting with hundreds of patients who know exactly what you are going through?
Registration for the 2012 NET Cancer Patient Conference is now OPEN! The last conference in 2009 was SOLD OUT with almost 500 people in attendance.

The experience of spending 2-1/2 days with people who know and care about what you are going through is very worthwhile. If you haven't been to a national conference, please consider doing so. If you have, this one will be the best one ever!
Get more information
Register Now!
I can't make it
If you have questions, please contact us:
Phone: 866-850-9555

Conference Twitter hashtag: #2012NetConf
Thank you for your attention and response, I look forward to seeing you at the conference.
Maryann Wahmann

Doctor Eugene A. Woltering, the Carcinoid Cancer Awareness Network (CCAN) and the entire New Orleans Neuroendocrine Tumor Specialists (NOLANETS) team at Ochsner in Kenner LA are happy to announce the dates for the 2012 National Carcinoid-NETS conference. The conference will be held at the ASTOR CROWNE PLAZA at the corner of Bourbon Street and Canal Street in the heart of the French Quarter. We believe that the room cost will be $149.00/night, a real value for a hotel room in the “Quarter.” Our preliminary plans are to maintain the same format as the past New Orleans conferences.

On Thursday evening September 20th 2012 we will have our traditional social event featuring Dr Woltering leading everyone in a “second line.” This social event will start at 6:30 PM CST and will go until about 10:00 PM

On Friday and Saturday September 21st and 22nd 2012 we will have breakfast from 7:30 AM until 8:00AM and then lectures from 8:00AM until 5:00 PM each day with enough break time so that everyone is not worn out. I am not sure that we will have tow simultaneous sessions in the morning like last time….people had lots of mixed feelings on separating the group into different sessions.

Like always---- we learn from doing these conferences. We welcome your suggestions about what you liked and disliked at the last conference. Please feel free to send me speaker/conference suggestions at ewolte@lsuhsc.edu.

The cost of the conference registration fees have not been worked out, but everyone who has attended our other NOLA conferences have remarked on the inexpensive nature of the registration fees when compared to the number of speakers, free meals and morning/afternoon snacks.

We are hoping that “all ya all” come on down and party with Doc W. and the rest of the New Orleans team. The hotel is beautiful, the food is fabulous and the meeting will provide you with loads of information

Eugene A. Woltering MD FACS, The James D. Rives Professor of Surgery and Neurosciences
LSUHSC Department of Surgery, New Orleans LA 70112
504-884-3555-cell     Clinic address:
200 West Esplanade Ave, Suite 200, Kenner La 70065
504-464-8500- clinic appointments
504-464-8525-clinic fax
1-866-91-ZEBRA  (1-866-919-3272)

LSU Healthcare Network assumes no responsibility for your reliance on information provided by its physicians in this public area chat room, support group or bulletin board.  Receipt of information or communication in this public area is not a substitute for medical exams, services or treatment you should always seek from a medical professional.  You are solely responsible for any associated consequences, claims or disputes and you expressly consent to jurisdiction in the courts of Louisiana where any may arise.  Call your doctor or 911 immediately for medical emergencies.


I have been working on a book since January 2011;
 it is 1/3 memoir, 1/3 genealogy, AND 1/3 Carcinoid - NETs,
plus some cultural history worked in through out the book.
  My editors shall copy edit and assist in layout, cover design and
all sorts of things involved with getting a book published. 
7-1-12 The Book is coming along just great!
It was published, in July 2013!

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NEW NINE Conferences for the Carcinoid and Neuroendocrine
Tumor Community By The Carcinoid Cancer Foundation (CCF)


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Registration now opened for our 2011 events

For details and to register got to www.carcinoidawareness.org

7th Annual Long Island NET Patient Conference
Saturday, August 20, 2011
Westbury, NY

Indy Carcinoid Awareness Network
Benefit for CCAN
Sept 16, 2011
Indianapolis, Indiana

CCAN ‘s 2011 NET Cancer Patient Conference Series
Saturday September 17, 2011
Indianapolis, Indiana

Saturday October 15, 2011
Dallas, Texas

The CCAN’s 3rd Annual Strides for Stripes Zebra Walk
Eisenhower Park, East Meadow, NY

Saturday, November 12, 2011 6 p.m. - 11 p.m.
The CCAN’s 8th Annual “Celebration of Life” Gala
The Sterling
545 Hicksville Rd. Bethpage, NY 11714

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New BOOK for the medical community:

Neuroendocrine Tumors: A Comprehensive Guide To Diagnosis and Management
published by Inter Science Institute.


Eugene A. Woltering, MD, FACS; Aaron I. Vinik, MD, PhD, FCP, MACP; Vay Liang W. (Bill) Go, MD; Thomas M. O’Dorisio, MD.

Those attending the Carcinoid Conference in Portland, OR
Sept. 28 - 30, 2006

received a copy of this book on CD in their registration packets.


A note from "Sunny" Susan Anderson regarding conferences.

From my experiences I can say, when attending a conference, you shall have a very educational and enjoyable time.  First we get to meet and hear some very special doctors speak, so we learn new things; then we are able to put faces with the people we only know on-line by their names;  we net-work with old friends, make new friends and know that we are not alone in battling our neuroendocrine cancer.

For the seven conferences I have attended, and others I was not able
to attend, click on the links to
 Conferences Past and Conference Pictures.  The conferences that I have been fortunate to attend were: 
March 3 and 4, 1999, The history making 1st Carcinoid
Seminar, Sarasota, Florida
May 11 and 12, 2000, The 2nd National Carcinoid Symposium
2000, Sarasota, Florida
April 12 & 13, 2002, The 3rd National Carcinoid Symposium,
Tampa, Florida
October 25, 2003 - CA Carcinoid Fighters Seminar 2003,
Santa Ana, California
September 23, 24, 25, 2004, Carcinoid Conference, New
Orleans, LA and
November 20, 2004,  1st International Meeting of Patient
Self-Help Groups (ENETS) Berlin, Germany

September 22, 23, 24, 2005, Carcinoid Conference, Philadelphia, PA

September 28, 29, 30, 2006, National Carcinoid / NET Conference, Portland, OR

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Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good).  I do love hearing from others, but an unable to reply to all individually.  I shall not forget my many Carcinoid friends and of course shall reply to you … as time permits.  This web site was 17 years old on April 27, 2014, and my plan is to keep it updated for many years to come.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time.  Yes, there is wireless internet and we have tried that a number of places.  But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages.  You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday  10 a.m. to 4 p.m. Eastern Time at  1-888-722-3132 (free) or 1-914-693-1001.   “The information and support line” is staffed by medical professionals.   Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message.  The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

CCF -  Serving the carcinoid/NETs  patient and medical community for 
more than forty years (chartered in 1968)
   “Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau

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DISCLAIMER:  I am a patient and NOT a medical doctor or health care professional.  I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories.  I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals.  "Sunny" Susan Anderson superb web site is at http://www.carcinoid.org

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Last modified: 01/30/14