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CARCINOID CANCER

A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

 

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Upcoming Conference

Updated:  July 5, 2010

Please read last section on this page - below.  Thank you, Susan, 1-26-2009

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 NEW -2010 Alexandria, Virginia Carcinoid and Neuroendocrine Tumor Patient Conference - NEW
at the Crowne Plaza Old Town in Alexandria, Virginia
 from 8:00 a.m. to 5:00 p.m. on
September 25th.

sponsored by
InterScience Institute (ISI) and the Carcinoid Cancer Awareness Network (CCAN)
 
“A
Multidisciplinary Approach to the Diagnosis, Treatment and Monitoring of NETs.”
The guest speakers and their topics are:

·        Dr. Eugene Woltering, Neuroendocrine Cancer Patients – A Personalized Approach to Choosing the Best Course of Treatment

·        Dr. Aaron Vinik, Neuroendocrine Tumors:  Recognition, Potential New Therapies and a Look at the Future

·        Paris Mamikunian, The Science Behind the Tests – Assessing NET Patient Biomarkers

·        Robert Wahmann, New Advances in World NET Patient Advocacy

·        Dr. Thomas O’Dorisio, Choosing Options of Care and the Value of Tumor Markers in the Process

·        Dr. Vay Liang W. Go, Nutrition and Gastroenteropancreatic Neuroendocrine Tumors (GEP-NETs)

For further information or to register, contact the Carcinoid Cancer Awareness Network,
toll-free at 1-866-850-9555, www.carcinoidwareness.org

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http://www.cnetscanada.org/

Please register for the May 13-16, 2010, Vancouver International CNETS Canada Conference for patients and med professionals.

The Vancouver Conference tentative program is now on the CNETS Canada website at www.cnetscanada.org.

This program will be instrumental in moving the needs of the International Carcinoid NET patient community forward. And we would love to see you in Vancouver. It is a really great place as the Winter Olympics will demonstrate.

We feel that our program is 90% complete. We will add more information as we get it.

So please register for the Vancouver International Conference online at www.cnetscanada.org . We can also help you register offline if you like. Please just email info@cnetscanada.org with questions or if you need help.
Dates are May 13-16, 2010.

Please go to www.cnetscanada.org  and register for the conference. We only have room for a total of 370 people including faculty so you may want to register before all the spaces are gone. A number of people actually booked before this programme came out and we thank you for your trust in our ability to generate an effective conference. 

Maureen Coleman, President, CNETS Canada
4103-3219 Yonge St., Toronto, ON
M4N 3S1
416-544-8467     416-788-6879    www.cnetscanada.org
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 2009 National Carcinoid / NET Patient Conference

Thursday - Saturday
September 24 - 26, 2009

Astor Crowne Plaza
739 Canal Street, New Orleans, LA

Registration limited to 500
For all details & registration click on line below

http://carcinoidawareness.org

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Northern California Carcinoid-Neuroendocrine Tumor

 Support Group

Presents

Current Treatment and Diagnosis of  Carcinoid - Neuroendocrine Tumors

A Symposium for Healthcare Professionals, Patients and Caregivers

 Saturday, February 7, 2009

8:00 am – 3:00 pm

Marriott Hotel

2355 North Main St., Walnut Creek, CA

 Guest Speakers 

Edda Gomez-Panzani, MD

Carcinoid Syndrome and Carcinoid Crisis

Vice President Clinical Sciences – Neurendocinology Ipsen Pharmaceuticals

Background in trauma surgery -  Drug research and development for over 15 years

Eugene Woltering MD

Update for Treatment and Diagnosis of NET’s

 and recent work on Angiogenesis and Metastasis

James D. Rives Professor of Surgery and Neuroendocrine

Louisiana State University Health Sciences Center, New Orleans, Louisiana 

Q&A: Physician Panel

 Patient Afternoon Session

Specifics TBA 

Registration 8:00-8:45 am

Refreshments 

RSVP by January 14, 2009

This symposium has been made possible through the generous gifts of NCCN members

The Carcinoid Cancer Foundation, New York, NY

Carcinoid Cancer Awareness Network, New York, NY

Special thanks to Brian Bowe, for the NCCN Logo

Registration Fee

$15.00 per person or $25.00 per couple

Limited scholarships are available

Contact Jeanette at carcinet2@sbcglobal.net to apply

Rooms available at $105.00 a night,

Single or double occupancy

Space limited, mention NCCN for special rate

Reserve before January 7, 2009

by calling the Marriott Hotel at (925) 934-2000

To register complete the following form and email to:  carcinet2@sbcglobal.net or mail completed form to:  NCCN Symposium, 3078 Stagecoach Rd., Placerville, CA 95667

 

Name: __________________________________________________________________

Address/City/State: _______________________________________________________

Contact phone: ___________________________________________________________

Email address: ___________________________________________________________

Optional: Primary site: _____________________________________________________

 

Send your registration fee to:

NCCN

c/o Debra Wilson Treasurer

3078 Stagecoach Rd., Placerville, CA 95667

Make checks or money orders payable to: Debra Wilson/NCCN (treasurer)

Or

Pay on line at:  www.paypal.com

Click "Send Money", in the "To:" field enter register@carcinoid_net.org, complete form and follow instructions. In “Message to recipient” please include your name, guest name address and phone number in case we need to contact you.

 For questions or more information contact:

Jeanette Shaffner

(530) 822-5422

cancerfighter@sbcglobal.net

We look forward to your joining us for a spectacular informative filled day

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THE CARCINOID AWARENESS NETWORK (CCAN) IS GOING TO HELP WITH REGISTRATION AND WILL HELP US PROVIDE THE DAY TO DAY WORKER BEES TO MAN THE REGISTRATION DESKS ETC. ANYONE ONE WHO KNOWS THESE FOLKS KNOW THAT THIS WILL MEAN THAT EVERYTHING WILL RUN SMOOTHLY. 

     We are in the process of contacting corporate sponsors to help make this conference happen. Again -- (like the last time) breakfast and lunch on Friday and Saturday and the munchies at the Thursday evening mixer will be part of the registration cost (TBA). You will be on your own for dinner on Thursday (if you are still hungry - after the social event --- but if you were here last time I think that you won't be hungry) and will be on your own on Friday and Saturday for dinner.

      We will have to guarantee the A-C-Plaza 200 room nights on Thursday and Friday and Saturday and we will limit registration to the first 500 folks who sign up. As you know the Portland and Norfolk conferences had waiting lists so don't be a  "I SHOULD OF "--- PERSON.

     Stay tuned for specific meeting registration information and how to sign up for room registration at the Astor Crowne Plaza.

     Let's all take a moment to thank the folks who are helping us do this --- the Kenner Ochsner team and the CCAN team!!!  More "thank ya'alls" will be coming as I enlist more sponsors. 

     Put this on your schedule RIGHT now---you will forget this if you = don't do it now!!!! 

Please pass this along to all of your support groups, on line groups (yahoo – ACOR - etc) and tell your docs and their staffs. 

     While this is not a CME conference ---- it is perfect for the doc or office staff who wants to learn about NETS so that they can take better care OF YOU!!!!!

PLUS IT IS IN NEW ORLEANS -- the most fun city in the world ----- smile -- unlike Las Vegas -- what happens in New Orleans remains buried in the swamp ---- FOREVER! 

Eugene A. Woltering MD FACS
The James D. Rives Professor of Surgery and Neurosciences
LSUHSC Department of Surgery
New Orleans LA 70112
504-884-3555-cell
Clinic address: 200 West Esplanade Ave, Suite 200, Kenner La 70065
504-464-8500 - clinic appointments
504-464-8525 -clinic fax
1-866-91-ZEBRA (1-866-919-3272)

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Photo's and info on all the speakers at the Carcinoid Conference
Sept. 28 to 30, 2006, in Portland, OR.  
http://www.urzebra.net/speakers.php

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New book for the medical community:

Neuroendocrine Tumors: A Comprehensive Guide To Diagnosis and Management published by Inter Science Institute.

Authors:

Eugene A. Woltering, MD, FACS; Aaron I. Vinik, MD, PhD, FCP, MACP; Vay Liang W. (Bill) Go, MD; Thomas M. O’Dorisio, MD.

Those attending the Carcinoid Conference in Portland, OR
Sept. 28 - 30, 2006

received a copy of this book on CD in their registration packets.

I++++++++++

A note from "Sunny" Susan Anderson regarding conferences.

From my experiences I can say, when attending a conference, you shall have a very educational and enjoyable time.  First we get to meet and hear some very special doctors speak, so we learn new things; then we are able to put faces with the people we only know on-line by their names;  we net-work with old friends, make new friends and know that we are not alone in battling our neuroendocrine cancer.


For the seven conferences I have attended, and others I was not able
to attend, click on the links to
 Conferences Past and Conference Pictures.  The conferences that I have been fortunate to attend were: 
 
March 3 and 4, 1999, The history making 1st Carcinoid
Seminar, Sarasota, Florida
 
May 11 and 12, 2000, The 2nd National Carcinoid Symposium
2000, Sarasota, Florida
 
April 12 & 13, 2002, The 3rd National Carcinoid Symposium,
Tampa, Florida
 
October 25, 2003 - CA Carcinoid Fighters Seminar 2003,
Santa Ana, California
 
September 23, 24, 25, 2004, Carcinoid Conference, New
Orleans, LA and
 
November 20, 2004,  1st International Meeting of Patient
Self-Help Groups (ENETS) Berlin, Germany

September 22, 23, 24, 2005, Carcinoid Conference, Philadelphia, PA

September 28, 29, 30, 2006, National Carcinoid / NET Conference, Portland, OR

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Please read last section on this page - below.  Thank you, Susan, 1-26-2009


Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good).  I do love hearing from others, but an unable to reply to all individually.  I shall not forget my many Carcinoid friends and of course shall reply to you … as time permits.  This web site was 11 years old on April 27, 2008, and my plan is to keep it updated for many years to come.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time.  Yes, there is wireless internet and we have tried that a number of places.  But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages.  You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday  10 a.m. to 4 p.m. Eastern Time at  1-888-722-3132 (free) or 1-914-693-1001.   “The information and support line” is staffed by medical professionals.   Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message.  The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

CCF -  Serving the carcinoid/NETs  patient and medical community for close to forty years (chartered in 1968)
   “Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau


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DISCLAIMER:  I am a patient and NOT a medical doctor or health care professional.  I share information and links to information that has been helpful to me and that I believe to be correct and good, but I cannot guarantee the accuracy of this information, except for MY stories.  I urge you not to rely only on this information but I believe you should discuss your situation and information with your medical doctors and/or other medical professionals.  "Sunny" Susan Anderson superb web site is at http://www.carcinoid.org

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Copyright © 1997-2009 Susan L. Anderson. All Rights Reserved.
 


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0Copyright © 1997-2010 Susan L. Anderson. All Rights Reserved.
Last modified: 06/29/10