|
| |
Updated:
July 20, 2010
* * * * * * * * * * * *
NEW
- Alexandria, Virginia
Carcinoid
and Neuroendocrine Tumor Patient Conference
- NEW
at the
Crowne Plaza Old Town
in
Alexandria, Virginia, from
8:00 a.m. to 5:00 p.m. on
September 25th.
sponsored by
InterScience Institute (ISI)
and the
Carcinoid Cancer Awareness Network (CCAN).
The
guest speakers:
Dr. Eugene Woltering,
Neuroendocrine Cancer Patients – A Personalized Approach to Choosing the Best
Course of Treatment
Dr. Aaron Vinik,
Neuroendocrine Tumors: Recognition, Potential New Therapies and a Look at the
Future
Paris Mamikunian,
The Science Behind the Tests – Assessing NET Patient Biomarkers
Robert
Wahmann,
New Advances in World NET Patient Advocacy
Dr. Thomas O’Dorisio,
Choosing Options of Care and the Value of Tumor Markers in the Process
Dr. Vay Liang W. Go,
Nutrition and Gastroenteropancreatic Neuroendocrine Tumors (GEP-NETs)
For further information or to register, contact the
Carcinoid Cancer Awareness
Network,
toll-free at 1-866-850-9555,
www.carcinoidwareness.org
* * * * * * * * * * * *
On the Travel section of this web site, click button to your left:
On photo pages click on any "thumbnail"
image for a larger view.
New
- Easter Island, Chile (total
solar eclipse), & - New
Tahiti, Moorea & Bora Bora, French Polynesia
July 9 – 17, 2010 - Write-Up
New -
Susan's photographs of Easter Island, Chile, - New
and French Polynesia July 9 - 17, 2010
New - Howard's photographs of
the total solar eclipse - New
Easter Island, Chile, July 11, 2010
NEW
- Visit the NEW Blog of the Carcinoid Cancer Foundation, Inc.-
NEW
URL:
http://carcinoid.wordpress.com
* * * * * * * * * * * *
When she was finally diagnosed with carcinoid
cancer in 1995, Susan Anderson
had already spent 8 years trying to find out what was the cause of
her “anemia,”
pain, and losing 62 pounds in 6 months. Little ...
To read the full blog please click here:
carcinoid.wordpress.com
* * * * * * * * * * * *
News from Australia
Become a Friend of the Unicorn Foundation
(http//www.unicornfoundation.org.au)
Launched February 2010 - Our New Website
(http//www.unicornfoundation.org.au)
See our new patient support groups in
both NSW & ACT (http//www.unicornfoundation.org.au)
* * * * * * * * * * * *
* * * * * * * * * * * *
PLEASE see the message from Dr.
Eugene Woltering in the "Awareness" section of this web site.
* * * * * * * * * * * *
www.carcinoidawareness.org.
Carcinoid
Cancer Awareness Network
CCAN Inc
2480 Hull Ave
N. Bellmore NY 11710
516 781 7814
New Toll Free # 1 866 850 9555
carcinoidaware@aol.com
* * * * * * * * * * * *
under "Genealogy"
our 2009 Christmas / Holiday letter with pictures
* * * * * * * * * * * *
Join me, Susan Anderson, and other
Carcinoid friends --from
around the world, on www.facebook.com
see under my CAUSES -- CARCINOID
* * * * * * * * * * * *
The
Carcinoid (Yahoo) On Line Information
and Discussion Group began April 18, 1998
This is a MODERATED mailing list for patients, parents, friends,
researchers, and physicians to discuss clinical, nonclinical issues and advances
pertaining to Carcinoids. This includes patient experiences, hormone induced
psychological issues, new research, clinical trials, and discussion of current
treatment practices. This is an INFORMATION DISCUSSION mailing list and it is
NOT a support group.
To join the Carcinoid YAHOO On Line Discussion Group:
CLICK HERE NEW web site location 12/4/2008
* * * * * * * * * * * *
A Webinar with Dr. Richard R. P. Warner, MD
"
Carcinoid & NET'S: An Overview of Current Management in The United States"
To view this webinar
go to
www.carcinoidawareness.org
Click on replay webinar page (link on left side of page)
Dr. Richard R. P. Warner, M.D. is
Medical Director of the Carcinoid Cancer Foundation.
Professor of Medicine, at The Mount Sinai Hospital and School of Medicine
with his focus of activity entirely devoted to clinical practice,
teaching and development of a Center for Carcinoid and related
Neuroendocrine Tumors, at The Mount Sinai Hospital and School of Medicine
Email:
carcinoidaware@aol.com)
* * * * * * * * * * * *
Howard & Susan Anderson honored
The AZ Bluegrass Assoc. honored them for their
"25 years of Hosting, Supporting, and Encouraging
Arizona Bluegrass Musicians".
Photo on this site under "Bluegrass Music".
* * * * * * * * * * * *
Off topic, leading a full and active life while living with Carcinoid.
Our 2009 Christmas letter is in
"Genealogy" and
Photos from our latest adventures ... New Zealand
- Australia, the Polar
Bears north
of Churchill, Manitoba, Canada are in "Travel",
both on this
web site, click on those in the list to your left.
* * * * * * * * * * * *
People Living With Cancer
this is now the Cancer Net
link:
http://www.cancer.net
* * * * * * * * * * * *
Assisted Living Directory
Also listed in Resource Library section of this web site
* * * * * * * * * * * *
Susan's Family Tree (Ahnentafel
Chart)
* * * * * * * * * * * *
The
recorded version of the
Web seminar
Diagnosis & Treatment of Carcinoid Cancer & NETs
on December 15, 2007
Go to the CCAN web site:
http://www.carcinoidawareness.org)
If you have comments or questions, contact the
seminar host,
Robert Wahmann, at:
carcinoidaware@aol.com
* * * * * * * * * * * *
Once-Monthly Somatostatin Analogue Increases Overall
Survival in Carcinoid Syndrome
published May 16, 2005 in Medical News Today
by Dr. Lowell Anthony.
Click here
A 5-Decade Analysis of 13,715 Carcinoid Tumors published 2003
in The American Cancer Society by Dr. Irv Modlin, et. al.
it is available at
www.pubmed.gov (http://www.pubmed.gov)
search the title. Notice in the full article --
the survival increased when Sandostatin was introduced.
* * * * * * * * * * *
See a new listing of the local Carcinoid
support groups that have
with a web site and/or elist for communications.
List in: On-Line Support and Local Support Groups.
* * * * * * * * * * * *
* * * * * * * * * * * *
Ochsner
Neuroendocrine Tumor Team
* * * * * * * * * * * *
North
American Neuroendocrine Tumor Society (NANETS)
is
composed of physicians
whose main mission is to increase
awareness and knowledge of neuroendocrine
tumors and to
promote education through the dissemination and sharing of
information in the medical community . These physicians also
help to
increase awareness within the general public of these
often rare conditions
by working closely with global support
groups. Click here:
http://nanets.net/joomla/
* * * * * * * * * * *
The European Neuroendocrine Tumor Society
(ENETS) is
composed of physicians
whose main mission is to increase
awareness and knowledge of neuroendocrine
tumors and to
promote education through the dissemination and sharing of
information in the medical community . These physicians also
help to
increase awareness within the general public of these
often rare conditions
by working closely with global support
groups. Click here:
http://www.neuroendocrine.net/rel/index.php4?rubrik_id=1&headline=Home
* * * * * * * * * * *
Text of presentation given Sept. 30, 2006
by
Howard Anderson
“Living With Uncertainty: Specifically For
Caregivers”
Click here
* * * * * * * * * * * *
Capital Area Carcinoid Survivors
(CACS)
Web site has moved, the NEW URL is:
http://members.cox.net/cacsva/index.htm
* * * * * * * * * * * *
Logan Diving & Salvage (and marine construction - since 1947)
in Jacksonville, FL & Catano, Puerto Rico
Our son Scott's site, he is the President.
Many
interesting pictures, most of which are of Scott, the tall blonde.
* * * * * * * * * * * *
Please read last section on this page - below.
Thank you, Susan
Since
1996 --- when I first located others with
Carcinoid --- I have answered every email sent to me, although some replies were
delayed longer than I liked. I am NO longer able to reply to all e-mails due to
the volume and other things going on in my life (all good). I do love hearing
from others, but an unable to reply to all individually. I shall not forget my
many Carcinoid friends and of course shall reply to you … as time permits. This
web site was 11 years old on April 27, 2008, and my plan is to keep it updated
for many years to come.
Since my husband "retired"
I am away from my computer for days, and sometimes, weeks at a time. Yes, there
is wireless internet and we have tried that a number of places. But, if I deal
with email when we are away from home then it is not a "restful vacation" for
me.
PLEASE
use the SEARCH
capability at the top my pages. You may search for a word, a phrase, a drug, a
treatment, a book title or anything you can think of. You may search this site
only, or search the complete World Wide Web.
To speak with
a person
please know you may call the “telephone information and support line” of the
Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4
p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The
information and support line” is staffed by medical professionals. Mondays and
Fridays are research days, if you call then and do not reach a person do leave a
clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at
http://www.carcinoid.org
* * * * * * * * * * *
*
DISCLAIMER:
I am a patient and
NOT a medical doctor or health care professional. I share information and
links to information that has been helpful to me and that I believe to be
correct and good, but I cannot guarantee the accuracy of this information,
except for MY stories. I urge you not to rely only on this information
but I believe you should discuss your situation and information with your
medical doctors and/or other medical professionals.
"Sunny" Susan Anderson
Copyright © 1997-2009 Susan L. Anderson. All Rights
Reserved. |
