CARCINOID CANCER

A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

Conference Presentations

Updated: Oct. 16, 2008

NEW - Carcinoid Conference, Norfolk, VA Sept. 2007 - NEW

NEW: Webcasts from the Carcinoid NETs Conference in Norfolk Virginia

These recordings were produced at the Carcinoid NETs Conference 2007, held in Norfolk Virginia, and supported by the Carcinoid Cancer Foundation

TO VIEW: CLICK HERE http://www.carcinoid.org/pcf/lectures/index.shtml

The conference is now over, and we are uploading the files, so please keep checking here for the latest updates.

This Carcinoid NETs event , addressed a broad range of topics for an audience that included patients, caregivers and physicians. There were both daytime and evening presentations, so there are lots of materials to review.

The presentations require Flash and Windows Media Player. MP3 audio only versions are also available (just right click and 'Save As' to download these files).

NEW - The first batch of webcasts ( Day one --Main sessions)
from the Portland, OR Conference (Sept. 2006)
are now available on the CCF website: You will find them under Noteworthy and
Lecture Transcripts and Webcasts from the main page http://www.carcinoid.org
Note that at present they can only be viewed with Internet Explorer.
Enjoy....you will have five hours of viewing for starters.
CCF - Serving the carcinoid/NETs patient and medical community
for over 35 years (chartered in 1968)

WEBCASTS of lectures from the Philadelphia patient
conference are now online
The National patient Carcinoid/NET Conference 2005 was held
on September 22, 23, 24th in Philadelphia, PA
This conference was videotaped and all lectures are now
partially available. All lectures are expected to be
completed within two weeks.
To view webcasts of the lectures and photos from the Philadelphia
conference go to:
http://www.carcinoid.org/news/index.shtml

Report from 1st International Meeting of Patient Self-Help Groups for patients with neuroendocrine tumors.
Saturday, November 20, 2004, Berlin, Germany Journal of Human Cancer

The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome
September 23, 24, 25, 2004, New Orleans, Louisiana

“This conference represents the cutting edge of medical information dispersal. Getting life saving information to patients with this exceedingly rare disease allows the patient to educate their local doctors rather than the usual paradigm in which physicians are the ones with the knowledge.” - Dr. Eugene Woltering, M.D. FACS

Streaming video of the presentations made at the Sept. 2004, New Orleans, LA, Carcinoid Conference

Click on this link: http://sgapp5.knowledgeplatform.com/upload/nola_2004

At the above link you will find streaming video in broadband, lowband and MP3 (audio) of all the presentations:
- Introductions by Dr. Larry Hollier & Dr. Eugene Woltering
- What is Carcinoid and How Does It Affect You? by Dr. Richard Warner, M.D.
- What are peptides, Amines and Receptors? How Do They Work? by Dr. Thomas M. O'Dorisio, M.D.
- What You Need to Know About Radioactive Particles and Their Friends like Indium, Yttrium and Lutetium by Mr. Gregory Espenan
- What is New in Somatostatin Analog Therapy by Dr. Lowell Anthony, MD FACP
- Alternative Therapies: A Good Idea But is it Good Medicine? by Dr. Mary Hardy
- Cancer and the Law - What You Need To Know by Barbara Schwerin, JD
- An Update on Therapy with Radiolabeled Somatostatin Analogs by Dr. Larry Kvols, MD
- An Update on the First 100 Patients Treated With High-Dose 111In Pentetreotide by Dr. Louis Linares
- The Role of Surgery, Cytoreduction, Chemoembolization and Liver Transplantation in Carcinoid by Dr. Daniel Frey, M.D. FACS
- The Role of Hospice in Carcinoid Patients by Dr. Jay Thomas, M.D.
- The Role of Diet and Nutrition in Carcinoid Patients by Mrs. Leigh Anne Geisler Burns, LDN/RD, CNSD
- Financial Planning in Patients with Carcinoid by Mr. Charles Kerwood

(The format is wrong on these papers from New Orleans, shall redo ASAP. Susan, May 10, 2005)

Lowell Anthony MD FACP What is New in Somatostatin Analog Therapy.
Associate Professor of Medicine Section of Medical Oncology The Louisiana State University Health Sciences Center New Orleans Louisiana
The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 24, 2004

Barbara Schwerin JD Cancer and the Law: What You Need to Know
Director, Cancer Legal Resource Center Adjunct Professor of Law Loyola Law School Los Angeles California
The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 24, 2004

Daniel Frey MD FACS The Role of Surgery, Cytoreduction, Chemoembolization and Liver Transplantation in Carcinoid
Professor of Surgery Vice Chairman Department of Surgery Director of the Transplant Institute Louisiana State University Health Sciences Center New Orleans
Louisiana The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 25, 2004

Jay Thomas MD The Role of Hospice in Carcinoid Patients
Assistant Clinical Professor of Medicine Clinical Medical Director of the San Diego Hospice & Palliative Care University of California San Diego California
The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 25, 2004

Leigh Anne Geisler Burns MS, LDN/RD, CNSD The Role of Diet and Nutrition in Carcinoid Patients
Instructor of Clinical Medicine Department of Medicine Section of Nutrition Louisiana State University Health Sciences Center New Orleans Louisiana
The Current State of the Art in the Diagnosis and Treatment of Carcinoid and Carcinoid Syndrome, Sept. 25, 2004

NEW - Interviews on video made at the 2004 New Orleans Carcinoid Conference - NEW
Some of the things discussion are answers to questions commonly asked by newly diagnosed patients
Eugene A. Woltering, MD., Gregory D. Espenan, M.D., Daniel Frey, M.D.
Susan Anderson, Carol-Anne Wilson, Jim Weiveris
Click here for the video interviews

Thanks to the Carcinoid Cancer Foundation, Inc.
for giving me permission to directly link to the presentations
listed below, for your convenience.

CARCINOID TREATMENT TODAY AND TOMORROW, October 25, 2003, Santa Ana, CA

Carcinoid Tumors and Carcinoid Syndrome: What they are, how they behave and how they are diagnosed
Presented by Richard R.P.Warner MD
Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and
Clinical Associate Professor of Medicine, Weill Medical College of Cornell University , New York, NY, and
Medical Director, Carcinoid Cancer Foundation, Inc.
Carcinoid Treatment Today and Tomorrow, October 25, 2003, Santa Ana, CA

New Concepts in the Treatment of Carcinoid Tumors: What's New, What's Not, and What's Hot
Presented by Eugene A. Woltering MD
James D. Rives Professor of Surgery and Neuroscience at Louisiana State University Health Sciences Center
Chief of the Sections of Surgical Endocrinology and Surgical Oncology
Director of Surgery Research at Louisiana State University.
Carcinoid Treatment Today and Tomorrow, October 25, 2003, Santa Ana, CA

Peptides and Amines: What are They and What do They do?
Presented by: Thomas M. O'Dorisio, M.D.
Professor: Department of Internal Medicine,
Division of Endocrinology and Metabolism
University of Iowa
Carcinoid Treatment Today and Tomorrow, October 25, 2003, Santa Ana, CA

The Role of Surgery and Chemobolization in the Management of Carcinoid
Presented by: Rodney Pommier, MD, FACS
Associate Professor of Surgery, Division of General Surgery, Section of Surgical Oncology
Oregon Health Sciences University
Carcinoid Treatment Today and Tomorrow, October 25, 2003, Santa Ana, CA

Carcinoid Case Presentation and Discussion – The American Perspective
Dr. Richard R P Warner
Department of Medicine, Gastrointestinal Division, The Mount Sinai School of Medicine,
One Gustave L. Levy Place, New York, NY 10029, USA
Presented at the ENET meeting in London, May 2003

Abstract: The rationale underlying an aggressive approach in the management of some carcinoid patients is explained and illustrated by the presented case of a middle-aged man with advanced classic typical midgut carcinoid. The patient exhibited somatostatin receptor scintigraphy positive massive liver metastases, Carcinoid Syndrome, severe tricuspid and pulmonic cardiac valve disease with congestive heart failure, ascites, and malnutrition. He had been treated for several years with supportive medications and biotherapy including octreotide and alpha interferon but his tumor eventually progressed and his overall condition was markedly deteriorated when he first sought more aggressive treatment. This consisted of prompt replacement of both tricuspid and pulmonic valves, followed by hepatic artery chemoembolus injection and then surgical tumor debulking including excision of the primary tumor in the small intestine. In addition, radiofrequency ablation was utilized to reduce the volume of metastases in the liver. Prophylactic cholecystectomy was also performed and a biopsy of tumor was submitted for cell culture drug resistance testing. This was followed by systemic chemotherapy utilizing the drug (docetaxel) which the in vitro studies suggested as most likely to be effective. His excellent response to this succession of treatments exemplifies the successful application of aggressive sequential multi-modality therapy.

Diagnosing and Treating Carcinoid
Transcript of lecture from the METRO NY Carcinoid Support Group meeting
Sunday, April 27, 2003
Mt Sinai Hospital, NY
The Dana-Farber Experience
Guest Speaker: Matthew Kulke MD,
Assistant Professor of Medicine Department of Medical Oncology
Dana-Farber Cancer Institute, Boston
Introduction lecture by Dr. Richard R P Warner

Carcinoid Symposium 2002, Tampa, Florida, April 12-13, 2002

Coordinated by Dianne Comstock, R.N., M.Ed. and Rhonda Ryan RN
Made possible by an educational grant from Novartis Oncology

Carciniod Tumors and the Carcinoid Syndrome: "What's new in the therapeutic pipeline"
Presented by Larry K. Kvols MD
Professor of Medicine
H. Lee Moffitt Cancer Center & Research Institute, Tampa, FL
Carcinoid Symposium 2002, Tampe, FL, April 12 - 13, 2002

Psychological Effects of Carcinoid Diseases: A study for Carcinoid Patients and their caregivers
Presented by Elizabeth Soliday, PhD and Suzanne Smith, PhD
Carcinoid Symposium 2002, Tampe, FL, April 12 - 13, 2002

Coping with Carcinoid Diarrhea
Presented by Valerie Bennett, RN
Carcinoid Symposium 2002, Tampe, FL, April 12 - 13, 2002

Understanding Biochemical Markers
Presented by Nancy Gardner, Ph.D., AR
Carcinoid Symposium 2002, Tampe, FL, April 12 - 13, 2002

2002 Annual Update and Review of Carcinoid Disease 2002
Presented by Richard R.P.Warner MD
Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and
Clinical Associate Professor of Medicine, Weill Medical College of Cornell University, New York, NY,
and Medical Director, Carcinoid Cancer Foundation, Inc.
Metro NY Carcinoid Support Group, Tri-State Meeting
January 13, 2002
Mount Sinai Hospital, New York City

Carcinoid Wellness Conference, March 9, 2002, Memorial Medical Center, New Orleans, LA

Introduction to the Basic Sciences of Carcinoid
Presented by Eugene Woltering MD FACS
The James D. Rives Professor of Surgery and Neuro Science
Chief, Section of Surgical Endocrinology
Director Of Surgical Research The Louisiana State Health Science Center, New Orleans, LA
Carcinoid Wellness Conference, March 9, 2002 , Memorial Medical Center, New Orleans, LA

Current Concepts in the Medical Treatment of Carcinoid
Presented by Lowell Anthony MD
Louisiana State Univerisy Medical Center, New Orleans, LA
Carcinoid Wellness Conference, March 9, 2002, Memorial Medical Center, New Orleans, LA

National Carcinoid Symposium 2000

Sarasota, Florida, May 11, 2000

Coordinated by Dianne Comstock, R.N., M.Ed.

Made possible by an educational grant from Novartis Oncology
and sponsored by The Wellness Community-Southwest Florida

Diagnosis, Treatment, and Management of Carcinoid Cancer
Presented by Richard R. P. Warner, M.D.
Associate Clinical Professor of The Mount Sinai School of Medicine, New York, NY, and
Clinical Associate Professor of Medicine, Weill Medical College of Cornell University , New York, NY, and
Medical Director, Carcinoid Cancer Foundation, Inc.
National Carcinoid Symposium 2000, Sarasota, Florida, May 11, 2000

The Role of Sandostatin Analogue in the Reduction of Tumor Growth
Presented by Eugene Woltering, M.D.
Louisiana State University Medical Center, New Orleans, Louisiana
National Carcinoid Symposium 2000, Sarasota, Florida, May 11, 2000

Nutritional Concerns for the Carcinoid Patient
Presented by Monica E. Warner, M.S., R.D., C.D.N.
Research Coordinator, Carcinoid Cancer Foundation, Inc., New York, New York
National Carcinoid Symposium 2000, Sarasota, Florida, May 11, 2000

Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good). I do love hearing from others, but an unable to reply to all individually. This web site was 10 years old on April 27, 2007, and my plan is to keep it updated for many many years to come.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time. Yes, there is wireless internet and we have tried that a number of places. But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages. You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4 p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The information and support line” is staffed by medical professionals. Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

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CCF - Serving the carcinoid/NETs patient and medical community for close to forty years
(chartered in 1968)
“Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau

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