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NEUROENDOCRIN/CARCINOID CANCER

Carcinoid A rare form of "slow-growing" neuroendocrine cancer

Susan Anderson - An advocate for Carcinoid and Neuroendocrine Tumor Awareness

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                                                                                                        Updated:  27 April 2017

*******************
2016 was an exciting year for me; it was the 21st anniversary

of the diagnosis of my Carcinoid on 10 May 1995.

I am a 21 year survivor / winner!

This web site was 20 years old on April 27, 2017.

April 23, 2014 I began Dialysis every evening at home
due to being Stage 5 Chronic Kidney Disease.

************

016 National NET Patient  Conference
New Orleans, LA
September 22nd - Sept 24th.

http://www.netcancerawareness.org/

The Carcinoid Cancer Awareness Network (CCAN) has changed its name to The Neuroendocrine Cancer Awareness Network (NCAN). Just the name has changed, our service and commitment has not. Watch for our new updated website to debut early 2015. And thanks for your support! 

 

-7th Annual Strides for Stripes will be held on Saturday Oct 24, 2015

-12th Annual 'Celebration of Life Gala' will be held Saturday November 14,2015

************

The New Jersey Carcinoid Cancer NETwork is pleased to announce the opening of registration for our fourth one-day conference event.

This conference is an all day event entitled “Carcinoid/NETs: Living Longer, Living Better” on Saturday, October 03, 2015 at the Crowne Plaza, 2055 Lincoln Highway, Edison, NJ 08817. The cost to attend is $30 per person and includes light breakfast, sit down lunch, breaks, taxes & gratuities and all lectures for the day. The deadline to register for this event is September 12th for mailed registrations and September 16th for on-line registrations with a PayPal payment.

The hotel is offering overnight rooms for $105 per night plus tax (approx. $16). The deadline to book a room at this rate is September 02, 2015.

 Scheduled to lecture are
cardiologist Dr. Jerome Zacks, founder of the Carcinoid Heart Center in New York City.
Dr. Thomas O’Dorisio from University of Iowa and very well known with the NET community.
Nancy Roenhelt PhD, NP (you may better know her as Nancy Gardner) and
Dr Richard Warner (the “guru”) from Mt Sinai School of Medicine, New York City.

For more information, directions, and a draft agenda and to register, go to our website at www.NJCarcinoidNETwork.org and click on the conference button.

Posted by: NoidFighter@aol.com
=============================================

********
The Carcinoid Cancer Awareness Network (CCAN) has changed its name to The Neuroendocrine Cancer Awareness Network (NCAN). Just the name has changed, our service and commitment has not. Watch for our new updated website to debut early 2015. And thanks for your support! 
************

 

Mark Your Calendars

The 2015 NCAN Patient Conference series is a go- bringing you the most updated information.
There are 4 conferences next year so please try to attend at least one.

 

-March 28, 2015 in Uniondale, NY

-April 18, 2015 in Phoenix, AZ

-May 16, 2015 in Columbus, OH

-June 20, 2015 in Minneapolis, MN

************

Mildred “Millie” Kowalski, of Novartis Oncology announced at the Carcinoid Conference, in New Orleans, 9/22/2012 that I, Susan Anderson, am the recipient of the 2012 Warner Advocacy Award. I was sorry that we were unable to attend.  I am honored and thrilled to receive this very meaningful award!  Dr. Richard R. W. Warner, at my request, accepted this award on my behalf.

I will have the URLs to the Novartis page when updated with the 2012 information, on my web site, and then in mid-Oct. to the Carcinoid Cancer Foundation, Inc’s. web site.

THE WARNER ADVOCACY AWARD

A LASTING TRIBUTE TO MONICA WARNER

To commemorate the life and work of Monica Warner, who passed away in August 2009, Novartis Oncology, through Patient Advocacy and The NET Alliance, established the Warner Advocacy Award. This award is presented annually by Novartis Oncology to honor the patient, advocate, or caregiver who most embodies the passion, dedication, leadership, and spirit with which Monica Warner assisted patients, caregivers, and families affected by NETs.

The recipient will receive an individual nonmonetary award of recognition. Novartis Oncology will donate $10,000 to an approved 501(c)(3) charitable organization of the winner's choice. Institutions and non-501(c)(3) charitable organizations are not eligible to receive the award.

 
To read more about the award, click here: http://www.warneradvocacyaward.com/index.jsp  * * * * * * * * * * *

 Super great conference in 2012:
New Orleans, LA

 

Maryann Furlong Wahmann posted in Carcinoid Cancer Awareness Network

CCAN is Co sponsor with The University of...

Maryann Furlong Wahmann

6:25pm Feb 4

CCAN is Co sponsor with The University of Kentucky College of Medicine meeting on Saturday April 20, 2013
An Integrative Approach to the Management of NETs. for information go to
the link below or www.carcinoidwareness.org to regsiter.

An Integrative Approach to the Management of NETs

events.r20.constantcontact.com

To make reservations call 1-859-231-9000, or 1-877-539-1648 ask for th...

The New Jersey Carcinoid Cancer NETwork is pleased to announce the opening of registration for our fourth one-day conference event.

This conference is an all day event entitled “Carcinoid/NETs: Living Longer, Living Better” on Saturday, October 03, 2015 at the Crowne Plaza, 2055 Lincoln Highway, Edison, NJ 08817. The cost to attend is $30 per person and includes light breakfast, sit down lunch, breaks, taxes & gratuities and all lectures for the day. The deadline to register for this event is September 12th for mailed registrations and September 16th for on-line registrations with a PayPal payment.

The hotel is offering overnight rooms for $105 per night plus tax (approx. $16). The deadline to book a room at this rate is September 02, 2015.

 Scheduled to lecture are
cardiologist Dr. Jerome Zacks, founder of the Carcinoid Heart Center in New York City.
Dr. Thomas O’Dorisio from University of Iowa and very well known with the NET community.
Nancy Roenhelt PhD, NP (you may better know her as Nancy Gardner) and
Dr Richard Warner (the “guru”) from Mt Sinai School of Medicine, New York City.

For more information, directions, and a draft agenda and to register, go to our website at www.NJCarcinoidNETwork.org and click on the conference button.

Posted by: NoidFighter@aol.com
======================

 

* * * * * * * * * * * *

Zebra Del Lis
2012 NET Cancer Patient Conference
Where:
Astor Crowne Plaza - French Quarters
739 Canal Street at Bourbon
New Orleans, LA 70130

Driving Directions

 
When:
Thursday September 20, 2012 at 3:00 PM CDT
-to-
Saturday September 22, 2012 at 5:00 PM CDT

Add to my calendar
 
Greetings!

 
Are you looking for the most up-to-date information on NET cancer? Would you benefit from meeting with hundreds of patients who know exactly what you are going through?
 
Registration for the 2012 NET Cancer Patient Conference is now OPEN! The last conference in 2009 was SOLD OUT with almost 500 people in attendance.

 
The experience of spending 2-1/2 days with people who know and care about what you are going through is very worthwhile. If you haven't been to a national conference, please consider doing so. If you have, this one will be the best one ever!
Get more information
Register Now!
I can't make it
If you have questions, please contact us:
Phone: 866-850-9555

 
Conference Twitter hashtag: #2012NetConf
 
Thank you for your attention and response, I look forward to seeing you at the conference.
 
Sincerely,
 
Maryann Wahmann
CCAN
2012netconf@optonline.net
866-850-9555
 

**********
 http://www.carcinoid-newengland.org/

JUNE 8, 2012
 
NECC will be hosting a Carcinoid Conference
for Patients and Caregivers. 
 
CLICK HERE FOR CONFERENCE INFO & REGISTRATION

The New England Carcinoid Connection

* * * * * * * * * * * *
Many of these are NEW links although same topic!

* * * * * * * * * * * *
May 4 - 6, 2012: Ottawa, Canada, International
Carcinoid/NeuroEndocrine Conference. 
"Closing the Gap Between What Is and What Can Be For the NET Community."
       Fairmont Chateau Laurier
    Click on any "thumbnail" for a larger picture.
     Photographs posted May 12, 2012.  Click here

* * * * * * * * * * * *
2011 Halifax Carcinoid NeuroEndocrine Conference
for Patients and Medical Professionals

Saturday May 7, 2011, 9 a.m. - 4 p.m.

http://www.cnetscanada.org/2011_halifax_program.htm

* * * * * * * * * * * *

The VII International Conference on Rare Diseases and Orphan Drugs (ICORD 2011)
will be held in Tokyo, Japan , May 21-23, 2011.
Patients and patient groups, medical and healthcare professionals,
policymakers, government officials, and pharmaceutical, biotechnology,
and medical device industry representatives will have the opportunity
to exchange global perspectives.

ICORD » Tokyo 2011  

 A global meeting on international cooperation and public health
policies focussing on research, diagnosis, development
of and access to treatment, and care for rare diseases,
will be held in Tokyo (May, 21-23, 2011)

* * * * * * * * * * * *

NEW - Videos - NEW

Video Recordings and Lecture Transcripts of Local and National Patient Carcinoid/NET Conferences

**********

2010 Alexandria, Virginia Carcinoid and Neuroendocrine Tumor Patient Conference
at the Crowne Plaza Old Town in Alexandria, Virginia
 from 8:00 a.m. to 5:00 p.m. on
September 25th.

sponsored by
InterScience Institute (ISI) and the Carcinoid Cancer Awareness Network (CCAN)
 
“A
Multidisciplinary Approach to the Diagnosis, Treatment and Monitoring of NETs.”
The guest speakers and their topics are:

·        Dr. Eugene Woltering, Neuroendocrine Cancer Patients – A Personalized Approach to Choosing the Best Course of Treatment

·        Dr. Aaron Vinik, Neuroendocrine Tumors:  Recognition, Potential New Therapies and a Look at the Future

·        Paris Mamikunian, The Science Behind the Tests – Assessing NET Patient Biomarkers

·        Robert Wahmann, New Advances in World NET Patient Advocacy

·        Dr. Thomas O’Dorisio, Choosing Options of Care and the Value of Tumor Markers in the Process

·        Dr. Vay Liang W. Go, Nutrition and Gastroenteropancreatic Neuroendocrine Tumors (GEP-NETs)

For further information or to register, contact the Carcinoid Cancer Awareness Network,
toll-free at 1-866-850-9555, www.carcinoid
awareness.com

* * * * * * * * * * * *

http://www.cnetscanada.org/

Please register for the May 13-16, 2010, Vancouver International CNETS Canada Conference for patients and med professionals.

The Vancouver Conference tentative program is now on the CNETS Canada website at www.cnetscanada.org.

This program will be instrumental in moving the needs of the International Carcinoid NET patient community forward. And we would love to see you in Vancouver. It is a really great place as the Winter Olympics will demonstrate.

We feel that our program is 90% complete. We will add more information as we get it.

So please register for the Vancouver International Conference online at www.cnetscanada.org . We can also help you register offline if you like. Please just email info@cnetscanada.org with questions or if you need help.
Dates are May 13-16, 2010.

Please go to www.cnetscanada.org  and register for the conference. We only have room for a total of 370 people including faculty so you may want to register before all the spaces are gone. A number of people actually booked before this programme came out and we thank you for your trust in our ability to generate an effective conference. 

Maureen Coleman, President, CNETS Canada
4103-3219 Yonge St., Toronto, ON
M4N 3S1
416-544-8467     416-788-6879    www.cnetscanada.org
* * * * * * * * * * * *

 2009 National Carcinoid / NET Patient Conference

Thursday - Saturday
September 24 - 26, 2009

Astor Crowne Plaza
739 Canal Street, New Orleans, LA

Registration limited to 500
For all details & registration click on line below

http://carcinoidawareness.org

* * * * * * * * * * * *

 

Northern California Carcinoid-Neuroendocrine Tumor

 Support Group

Presents

Current Treatment and Diagnosis of  Carcinoid - Neuroendocrine Tumors

A Symposium for Healthcare Professionals, Patients and Caregivers

 Saturday, February 7, 2009

8:00 am – 3:00 pm

Marriott Hotel

2355 North Main St., Walnut Creek, CA

 Guest Speakers 

Edda Gomez-Panzani, MD

Carcinoid Syndrome and Carcinoid Crisis

Vice President Clinical Sciences – Neurendocinology Ipsen Pharmaceuticals

Background in trauma surgery -  Drug research and development for over 15 years

Eugene Woltering MD

Update for Treatment and Diagnosis of NET’s

 and recent work on Angiogenesis and Metastasis

James D. Rives Professor of Surgery and Neuroendocrine

Louisiana State University Health Sciences Center, New Orleans, Louisiana 

Q&A: Physician Panel

 Patient Afternoon Session

Specifics TBA 

Registration 8:00-8:45 am

Refreshments 

RSVP by January 14, 2009

This symposium has been made possible through the generous gifts of NCCN members

The Carcinoid Cancer Foundation, New York, NY

Carcinoid Cancer Awareness Network, New York, NY

Special thanks to Brian Bowe, for the NCCN Logo

Registration Fee

$15.00 per person or $25.00 per couple

Limited scholarships are available

Contact Jeanette at carcinet2@sbcglobal.net to apply

Rooms available at $105.00 a night,

Single or double occupancy

Space limited, mention NCCN for special rate

Reserve before January 7, 2009

by calling the Marriott Hotel at (925) 934-2000

To register complete the following form and email to:  carcinet2@sbcglobal.net or mail completed form to:  NCCN Symposium, 3078 Stagecoach Rd., Placerville, CA 95667

 

Name: __________________________________________________________________

Address/City/State: _______________________________________________________

Contact phone: ___________________________________________________________

Email address: ___________________________________________________________

Optional: Primary site: _____________________________________________________

 

Send your registration fee to:

NCCN

c/o Debra Wilson Treasurer

3078 Stagecoach Rd., Placerville, CA 95667

Make checks or money orders payable to: Debra Wilson/NCCN (treasurer)

Or

Pay on line at:  www.paypal.com

Click "Send Money", in the "To:" field enter register@carcinoid_net.org, complete form and follow instructions. In “Message to recipient” please include your name, guest name address and phone number in case we need to contact you.

 For questions or more information contact:

Jeanette Shaffner

(530) 822-5422

cancerfighter@sbcglobal.net

We look forward to your joining us for a spectacular informative filled day

* * * * * * * * * * * *

* * * * * * * * * * * *

THE CARCINOID AWARENESS NETWORK (CCAN) IS GOING TO HELP WITH REGISTRATION AND WILL HELP US PROVIDE THE DAY TO DAY WORKER BEES TO MAN THE REGISTRATION DESKS ETC. ANYONE ONE WHO KNOWS THESE FOLKS KNOW THAT THIS WILL MEAN THAT EVERYTHING WILL RUN SMOOTHLY. 

     We are in the process of contacting corporate sponsors to help make this conference happen. Again -- (like the last time) breakfast and lunch on Friday and Saturday and the munchies at the Thursday evening mixer will be part of the registration cost (TBA). You will be on your own for dinner on Thursday (if you are still hungry - after the social event --- but if you were here last time I think that you won't be hungry) and will be on your own on Friday and Saturday for dinner.

      We will have to guarantee the A-C-Plaza 200 room nights on Thursday and Friday and Saturday and we will limit registration to the first 500 folks who sign up. As you know the Portland and Norfolk conferences had waiting lists so don't be a  "I SHOULD OF "--- PERSON.

     Stay tuned for specific meeting registration information and how to sign up for room registration at the Astor Crowne Plaza.

     Let's all take a moment to thank the folks who are helping us do this --- the Kenner Ochsner team and the CCAN team!!!  More "thank ya'alls" will be coming as I enlist more sponsors. 

     Put this on your schedule RIGHT now---you will forget this if you = don't do it now!!!! 

Please pass this along to all of your support groups, on line groups (yahoo – ACOR - etc) and tell your docs and their staffs. 

     While this is not a CME conference ---- it is perfect for the doc or office staff who wants to learn about NETS so that they can take better care OF YOU!!!!!

PLUS IT IS IN NEW ORLEANS -- the most fun city in the world ----- smile -- unlike Las Vegas -- what happens in New Orleans remains buried in the swamp ---- FOREVER! 

Eugene A. Woltering MD FACS
The James D. Rives Professor of Surgery and Neurosciences
LSUHSC Department of Surgery
New Orleans LA 70112
504-884-3555-cell
Clinic address: 200 West Esplanade Ave, Suite 200, Kenner La 70065
504-464-8500 - clinic appointments
504-464-8525 -clinic fax
1-866-91-ZEBRA (1-866-919-3272)

 +++++++++

++++++++++
New book for the medical community:

Neuroendocrine Tumors: A Comprehensive Guide To Diagnosis and Management published by Inter Science Institute.

Authors:

Eugene A. Woltering, MD, FACS; Aaron I. Vinik, MD, PhD, FCP, MACP; Vay Liang W. (Bill) Go, MD; Thomas M. O’Dorisio, MD.

Those attending the Carcinoid Conference in Portland, OR
Sept. 28 - 30, 2006

received a copy of this book on CD in their registration packets.

I++++++++++

A note from "Sunny" Susan Anderson regarding conferences.

From my experiences I can say, when attending a conference, you shall have a very educational and enjoyable time.  First we get to meet and hear some very special doctors speak, so we learn new things; then we are able to put faces with the people we only know on-line by their names;  we net-work with old friends, make new friends and know that we are not alone in battling our neuroendocrine cancer.

For the nine (9) conferences I have attended, and others I was not able
to attend, click on the links to
 Conferences Past and Conference Pictures.  The conferences that I have been fortunate to attend were: 
 
March 3 and 4, 1999, The history making 1st Carcinoid
Seminar, Sarasota, Florida
 
May 11 and 12, 2000, The 2nd National Carcinoid Symposium
2000, Sarasota, Florida
 
April 12 & 13, 2002, The 3rd National Carcinoid Symposium,
Tampa, Florida
 
October 25, 2003 - CA Carcinoid Fighters Seminar 2003,
Santa Ana, California
 
September 23, 24, 25, 2004, Carcinoid Conference, New
Orleans, LA and
 
November 20, 2004,  1st International Meeting of Patient
Self-Help Groups (ENETS) Berlin, Germany

September 22, 23, 24, 2005, Carcinoid Conference, Philadelphia, PA

September 28, 29, 30, 2006, National Carcinoid / NET Conference, Portland, OR

May 4 - 6 , 2012, Ottawa, Canada, International Carcinoid/Neuroendocrine   Conference

***********************************

Registration closed on July 5 for the
2010 San Francisco Carcinoid and Neuroendocrine Tumor Patient Conference
,
sponsored by
InterScience Institute (ISI) and the Carcinoid Cancer Awareness Network (CCAN)
 
“A
Multidisciplinary Approach to the Diagnosis, Treatment and Monitoring of NETs.”
The conference will be held on Saturday, July 17th at the
Crowne Plaza San Francisco International Airport Hotel in Burlingame, California, from 8:00 a.m. to 5:00 p.m.

The guest speakers

         Dr. Eugene Woltering, Neuroendocrine Cancer Patients – A Personalized Approach to Choosing the Best Course of Treatment
    Dr. Aaron Vinik, Neuroendocrine Tumors:  Recognition, Potential New Therapies and a Look at the Future
   
Paris Mamikunian, The Science Behind the Tests – Assessing NET Patient Biomarkers
    Robert Wahmann, New Advances in World NET Patient Advocacy
   
Dr. Thomas O’Dorisio, Choosing Options of Care and the Value of Tumor Markers in the Process
    Dr. Vay Liang W. Go, Nutrition and Gastroenteropancreatic Neuroendocrine Tumors (GEP-NETs)

For those on the East Coast, the same conference will be presented
at the
Crowne Plaza Old Town in Alexandria, Virginia, from 8:00 a.m. to 5:00 p.m. on September 25th.

For further information or to register, contact the Carcinoid Cancer Awareness Network,
toll-free at 1-866-850-9555, www.carcinoidwareness.org

**********

May 13-16, 2010, Vancouver International CNETS Canada Conference for patients and med professionals.

The Vancouver Conference tentative program is now on the CNETS Canada website

http://www.cnetscanada.org/

This program will be instrumental in moving the needs of the International Carcinoid NET patient community forward.
And we would love to see you in Vancouver. It is a really great place as the Winter Olympics will demonstrate.

We feel that our program is 90% complete. We will add more information as we get it.

So please register for the Vancouver International Conference online at www.cnetscanada.org.
We can also help you register offline if you like.
Please just email info@cnetscanada.org with questions or if you need help.
Dates are May 13-16, 2010.

**********

It is with great pleasure that CCAN announces the 2009 National Patient
 Conference video is now available to view on our web site

www.carcinoidawareness.org. Click on 09 National Conference video link.

  Watch for the announcement of The  6th Annual LI  Conference video t
o be posted some  in the next week or so. .

 Carcinoid Cancer Awareness Network
CCAN Inc
2480 Hull Ave
N. Bellmore NY 11710
516 781 7814
New Toll Free # 1 866 850 9555

carcinoidaware@aol.com

November is Carcinoid/NET Cancer Awareness Month in New York State. Come celebrate with us!
Don't forget to visit to our website www.carcinoidawareness.org

**********

 Toronto, Canada, Conference October 16 - 19. 2008
23
presentations on-line (more coming)

Check them out at www.cnetscanada.org   the web site of the

The Carcinoid -Neuroendocrine Tumour Society Canada (CNETS CANADA)

**********

A Webinar with Dr. Richard R. P. Warner, MD
" Carcinoid & NET'S : An Overview of Current Management in The United States"
To view this webinar
go to
www.carcinoidawareness.org 
Click on replay webinar page (link on left side of page)
Dr. Richard R. P. Warner, M.D. is
Medical Director of the Carcinoid Cancer Foundation.
Professor of Medicine, at The Mount Sinai Hospital and School of Medicine
with his focus of activity entirely devoted to clinical practice,
teaching and development of a Center for Carcinoid and related 
Neuroendocrine Tumors, at The Mount Sinai Hospital and School of Medicine
 Email: carcinoidaware@aol.com)

**********

Dr. Woltering's lecture on the Carcinoid Cancer Foundation's
web site http://www.carcinoid.org,
along with other videos and transcripts from past lectures.
Direct link to this page is:
http://www.carcinoid.org/pcf/lectures/index.shtml

Or

The most recent lecture Dr. W has given was of the  Video recordings
 from The Carcinoid Cancer Awareness (CCAN)
3rd annual patient conference November 11, 2007,
is now available online.
 Access and view them from their website.
 http://www.carcinoidawareness.org/

**********

 Carcinoid Cancer Foundation, Inc. (CCF)

CCF 11th Annual Carcinoid/NET's Conference
For patients, caretakers and medical professionals
"Progress in Research and Treatment" (poster)
April 13, 2008

Mount Sinai Hospital New York, NY
Guest Speakers:
Herbert Chen, M.D., University of Wisconsin Paul P. Carbone
Comprehensive Cancer Center
Madison, Wisconsin
Andrew S. Kennedy, M.D., Wake Radiology Oncology
Cary, NC;
Networking and survivor stories
For more information click on the following links:

**********

Carcinoid Conference in Harrisburg, PA!

Diagnosis and Treatment of Carcinoid Cancer:  What We Need to Know.

Saturday, April 26, 2008, 9am - 4pm in Harrisburg, PA. 

Featured speakers:  
Dr. Matthew Kulke, Dr. Thomas O'Dorisio
and Judy Lyter, RN, MS, LPC.  
Dr. Harold Harvey, moderator

Details, including the agenda, can be viewed at the PCCAN.net website (see Conference)
The Carcinoid Cancer Awareness Network
http://www.carcinoidawareness.org

Please register early-- on-line registration is available.

Teresa Lanza
Pennsylvania Carcinoid Cancer Advocacy Network 
CarcinoidSupport@juno.com
717-576-5095
PCCAN.net

**********

 Carcinoid Conference, Norfolk, VA Sept. 2007

 
 NEW: Webcasts from the Carcinoid NETs Conference in Norfolk Virginia

These recordings were produced at the Carcinoid NETs Conference 2007, held in Norfolk Virginia, and supported by the Carcinoid Cancer Foundation

TO VIEW: CLICK HERE  

The conference is now over, and we are uploading the files, so please keep checking here for the latest updates.

This Carcinoid NETs event , addressed a broad range of topics for an audience that included patients, caregivers and physicians. There were both daytime and evening presentations, so there are lots of materials to review.

The presentations require Flash and Windows Media Player. MP3 audio only versions are also available (just right click and 'Save As' to download these files).

**********

 Pictures from the Portland, OR
Carcinoid Conference, Sept. 2006
Portland, OR 2006

For some of the presentations from some of these conferences please see:  Conference Presentations click here

For photographs from some of these conferences please see:  Pictures From Conferences
click here

- May 4 - 6, 2012: Ottawa, Canada, International Carcinoid/NeuroEndocrine       Conference. 
           Photographs now posted under "Conference Pictures"
                 Photographs posted May 12, 2012.  Click here


- September 28 -30, 2006: Carcinoid Conference, Portland, OR
      Photographs now posted under "Conference Pictures"
          Photographs posted April 19, 2007.  Click here

- September 22, 23, 24, 2005: Carcinoid Conference, Philadelphia, PA
     Photographs now posted under "Conference Pictures"

- April 20, 21, 22, 2005:  The European Neuroendocrine Tumor Society (ENETS) Second Annual Educational Conference for the Diagnosis and Treatment of Neuroendocrine Tumors, Cracow, Poland

- November 20, 2004 -- 1st International Meeting of Patient Self-Help Groups (ENETS) Berlin, Germany  European Neuroendocrine Tumors Society (ENETS) Click here

- November 15, 2004 --
UK NETwork 3rd National Neuroendocrine Tumour Conference, London, England Click here


- September 23, 24, 25, 2004 -- Carcinoid Conference, New Orleans, LA Click here

Interviews on video made at the 2004 New Orleans Carcinoid Conference   Some of the things discussion are answers to questions commonly asked by newly diagnosed patients. Eugene A. Woltering, MD., Gregory D. Espenan, M.D., Daniel Frey, M.D., Susan Anderson, Carol-Anne Wilson, Jim Weiveris Click here for the video interviews  These videos are no longer on-line!


- March 25-27, 2004 -  For Medical Professionals Only:  European Neuroedocrine Tumor Network (ENET) Conference, Budapest, Hungary

October 25, 2003 - CA Carcinoid Fighters Seminar 2003, Santa Ana, California Click here


- October 25, 2003
- Carcinoid 2003: Recent Advances in Diagnosis and Therapy CME credits for physicians and healthcare professionals, Santa Ana, California Canceled

- May 8 & 9, 2003 - For Medical Professionals Only: ENET Scientific Symposium, London, England 

- April 12 & 13, 2002 - The Third National Carcinoid Symposium, Tampa, Florida Click here


- March 21, 2002 - First UK NETwork Conference on Neuroendocrine Tumours, Birmingham, England Click here

- March 9, 2002 - Carcinoid Conference,  New Orleans, LA Click here

- April 28, 2001 - Carcinoid Conference, Portland, Oregon Click here

- June 24 and 25, 2000 - Carcinoid Cancer Conference, Bloomington, Minnesota Click here

- May 11 and 12, 2000 - The Second National Carcinoid Symposium 2000, Sarasota, Florida Click here


- October 22 and 23, 1999 - Another seminar was held in San Francisco, California Click here

- March 3 and 4, 1999 - The history making FIRST Carcinoid Seminar, Sarasota, Florida
Click here

For some of the presentations from some of these conferences please see: Conference Presentations click here

For photographs from some of the above conferences
please see: Pictures From Conferences
click here

Since 1996 --- when I first located others with Carcinoid --- I have answered every email sent to me, although some replies were delayed longer than I liked. I am NO longer able to reply to all e-mails due to the volume and other things going on in my life (all good).  I do love hearing from others, but an unable to reply to all individually.  This web site was 19 years old on April 27, 2016, and my plan is to keep it updated for many years to come.

Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time.  Yes, there is wireless internet and we have tried that a number of places.  But, if I deal with email when we are away from home then it is not a "restful vacation" for me.

PLEASE use the SEARCH capability at the top my pages.  You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.

To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday  10 a.m. to 4 p.m. Eastern Time at  1-888-722-3132 (free) or 1-914-693-1001.   “The information and support line” is staffed by medical professionals.   Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message.  The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org

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CCF -  Serving the carcinoid/NETs  patient and medical community for 
more than forty years (chartered in 1968)
   “Meets Extensive Standards of America’s Most Experienced Charity Evaluator”
Better Business Bureau

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Copyright © 1997-2016 Susan L. Anderson. All Rights Reserved.

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Last modified: 07/19/15