First organized: 17 June 1995
The "board" should consist of local friends as opposed to local family, or family and friends who live at a distance from the patient.
The "board" should meet face-to-face periodically, and each participant should have the names and phone numbers of the others.
The "board" may also meet without the patient, or keep in touch (if needed) by telephone.
The "board" may ask ANY questions of the patient.
The "board" assists by being an emotional and social support system.
In addition the "board" assists by asking questions, listing pros and cons of ideas that come up, or in a pinch doing research on a new treatment or drug, if needed, or running an errand (i.e., bookstore <G>), or assisting in transportation if the patient or patient's family is not able to do so.
The "board" may also watch for (and clip/save) newspaper, magazine articles, and information from the Internet regarding ANY type or cancer, new treatments, research, or information of any kind. The "board" does not make decisions or offer advice, but is there to remember the history and help in crucial decision making.
The patient is to share dreams, drawings, goals and etc. with the "board".
The patient is to keep her "board" up-to-date on her medical situation, and over-all life in general (all have bearing on healing).
- The board: Susan L. Anderson
- First friend: name, address, phone number
- Second friend: name, address, phone number
- Third friend: name, address, phone number
- Fourth friend: name, address, phone number
- Fifth friend: name, address, phone number
Additional "unofficial board" members:
-- (spouse) Howard C. Anderson, office phone:
-- Out-of-state friend, name, address, phone number
-- Out-of-state friend, name, address, phone number
-- Local friend: name, address, phone number
-- Local friend: name, address, phone number
Susan's father & children:
-- List of names, addresses and phone numbers
Since
1996 --- when I first located others with Carcinoid --- I have answered
every email sent to me, although some replies were delayed longer than I liked.
I am NO longer able to reply to all e-mails due to the volume and other things
going on in my life (all good). I do love hearing from others, but an unable to
reply to all individually.
This
web site was 14 years old on April 27, 2011, and my plan is to keep it updated
for many years to come.This web site
Since my husband "retired" I am away from my computer for days, and sometimes, weeks at a time. Yes, there is wireless internet and we have tried that a number of places. But, if I deal with email when we are away from home then it is not a "restful vacation" for me.
PLEASE use the SEARCH capability at the top my pages. You may search for a word, a phrase, a drug, a treatment, a book title or anything you can think of. You may search this site only, or search the complete World Wide Web.
To speak with a person please know you may call the “telephone information and support line” of the Carcinoid Cancer Foundation, Inc. (CCF), Tuesday through Thursday 10 a.m. to 4 p.m. Eastern Time at 1-888-722-3132 (free) or 1-914-693-1001. “The information and support line” is staffed by medical professionals. Mondays and Fridays are research days, if you call then and do not reach a person do leave a clear message. The Carcinoid Cancer Foundation’s (CCF) superb web site is at http://www.carcinoid.org
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CCF - Serving the
carcinoid/NETs patient and medical community for close to forty
years (chartered in 1968)
“Meets Extensive Standards of America’s Most Experienced
Charity Evaluator”
Better Business Bureau
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